Internet use by patients with bipolar disorder: Results from an international multisite survey

Rita Bauer; Jörn Conell; Tasha Glenn; Martin Alda; Raffaella Ardau; Bernhard T Baune; Michael Berk; Yuly Bersudsky; Amy Bilderbeck; Alberto Bocchetta; Letizia Bossini; Angela M Paredes Castro; Eric Yw Cheung; Caterina Chillotti; Sabine Choppin; Maria Del Zompo; Rodrigo Dias; Seetal Dodd; Anne Duffy; Bruno Etain; Andrea Fagiolini; Miryam Fernández Hernandez; Julie Garnham; John Geddes; Jonas Gildebro; Ana Gonzalez-Pinto; Guy M Goodwin; Paul Grof; Hirohiko Harima; Stefanie Hassel; Chantal Henry; Diego Hidalgo-Mazzei; Vaisnvy Kapur; Girish Kunigiri; Beny Lafer; Erik R Larsen; Ute Lewitzka; Rasmus W Licht; Anne Hvenegaard Lund; Blazej Misiak; Scott Monteith; Rodrigo Munoz; Takako Nakanotani; René E Nielsen; Claire O'Donovan; Yasushi Okamura; Yamima Osher; Patryk Piotrowski; Andreas Reif; Philipp Ritter; Janusz K Rybakowski; Kemal Sagduyu; Brett Sawchuk; Elon Schwartz; Ângela M Scippa; Claire Slaney; Ahmad H Sulaiman; Kirsi Suominen; Aleksandra Suwalska; Peter Tam; Yoshitaka Tatebayashi; Leonardo Tondo; Eduard Vieta; Maj Vinberg; Biju Viswanath; Julia Volkert; Mark Zetin; Peter C Whybrow; Michael Bauer

doi:10.1016/j.psychres.2016.05.055

Internet use by patients with bipolar disorder: Results from an international multisite survey

Rita Bauer, Jörn Conell, Tasha Glenn, Martin Alda, Raffaella Ardau, Bernhard T Baune, Michael Berk, Yuly Bersudsky, Amy Bilderbeck, Alberto Bocchetta, Letizia Bossini, Angela M Paredes Castro, Eric Yw Cheung, Caterina Chillotti, Sabine Choppin, Maria Del Zompo, Rodrigo Dias, Seetal Dodd, Anne Duffy, Bruno EtainAndrea Fagiolini, Miryam Fernández Hernandez, Julie Garnham, John Geddes, Jonas Gildebro, Ana Gonzalez-Pinto, Guy M Goodwin, Paul Grof, Hirohiko Harima, Stefanie Hassel, Chantal Henry, Diego Hidalgo-Mazzei, Vaisnvy Kapur, Girish Kunigiri, Beny Lafer, Erik R Larsen, Ute Lewitzka, Rasmus W Licht, Anne Hvenegaard Lund, Blazej Misiak, Scott Monteith, Rodrigo Munoz, Takako Nakanotani, René E Nielsen, Claire O'Donovan, Yasushi Okamura, Yamima Osher, Patryk Piotrowski, Andreas Reif, Philipp Ritter, Janusz K Rybakowski, Kemal Sagduyu, Brett Sawchuk, Elon Schwartz, Ângela M Scippa, Claire Slaney, Ahmad H Sulaiman, Kirsi Suominen, Aleksandra Suwalska, Peter Tam, Yoshitaka Tatebayashi, Leonardo Tondo, Eduard Vieta, Maj Vinberg, Biju Viswanath, Julia Volkert, Mark Zetin, Peter C Whybrow, Michael Bauer

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Abstract

There is considerable international interest in online education of patients with bipolar disorder, yet little understanding of how patients use the Internet and other sources to seek information. 1171 patients with a diagnosis of bipolar disorder in 17 countries completed a paper-based, anonymous survey. 81% of the patients used the Internet, a percentage similar to the general public. Older age, less education, and challenges in country telecommunications infrastructure and demographics decreased the odds of using the Internet. About 78% of the Internet users looked online for information on bipolar disorder or 63% of the total sample. More years of education in relation to the country mean, and feeling very confident about managing life decreased the odds of seeking information on bipolar disorder online, while having attended support groups increased the odds. Patients who looked online for information on bipolar disorder consulted medical professionals plus a mean of 2.3 other information sources such as books, physician handouts, and others with bipolar disorder. Patients not using the Internet consulted medical professionals plus a mean of 1.6 other information sources. The percentage of patients with bipolar disorder who use the Internet is about the same as the general public. Other information sources remain important.

Original language	English
Journal	Psychiatry Research
Volume	242
Pages (from-to)	388-394
Number of pages	7
ISSN	0165-1781
DOIs	https://doi.org/10.1016/j.psychres.2016.05.055
Publication status	Published - 2016

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Internet_use_by_patients_with_bipolar_disorder_green open access manuscriptAccepted author manuscript, 502 KBLicence: CC BY-NC-ND 4.0

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Bauer, R., Conell, J., Glenn, T., Alda, M., Ardau, R., Baune, B. T., Berk, M., Bersudsky, Y., Bilderbeck, A., Bocchetta, A., Bossini, L., Castro, A. M. P., Cheung, E. Y., Chillotti, C., Choppin, S., Del Zompo, M., Dias, R., Dodd, S., Duffy, A., ... Bauer, M. (2016). Internet use by patients with bipolar disorder: Results from an international multisite survey. Psychiatry Research, 242, 388-394. Advance online publication. https://doi.org/10.1016/j.psychres.2016.05.055

@article{9e0988d75e2c486199a1d36419f7bcbd,

title = "Internet use by patients with bipolar disorder: Results from an international multisite survey",

abstract = "There is considerable international interest in online education of patients with bipolar disorder, yet little understanding of how patients use the Internet and other sources to seek information. 1171 patients with a diagnosis of bipolar disorder in 17 countries completed a paper-based, anonymous survey. 81% of the patients used the Internet, a percentage similar to the general public. Older age, less education, and challenges in country telecommunications infrastructure and demographics decreased the odds of using the Internet. About 78% of the Internet users looked online for information on bipolar disorder or 63% of the total sample. More years of education in relation to the country mean, and feeling very confident about managing life decreased the odds of seeking information on bipolar disorder online, while having attended support groups increased the odds. Patients who looked online for information on bipolar disorder consulted medical professionals plus a mean of 2.3 other information sources such as books, physician handouts, and others with bipolar disorder. Patients not using the Internet consulted medical professionals plus a mean of 1.6 other information sources. The percentage of patients with bipolar disorder who use the Internet is about the same as the general public. Other information sources remain important.",

author = "Rita Bauer and J{\"o}rn Conell and Tasha Glenn and Martin Alda and Raffaella Ardau and Baune, {Bernhard T} and Michael Berk and Yuly Bersudsky and Amy Bilderbeck and Alberto Bocchetta and Letizia Bossini and Castro, {Angela M Paredes} and Cheung, {Eric Yw} and Caterina Chillotti and Sabine Choppin and {Del Zompo}, Maria and Rodrigo Dias and Seetal Dodd and Anne Duffy and Bruno Etain and Andrea Fagiolini and Hernandez, {Miryam Fern{\'a}ndez} and Julie Garnham and John Geddes and Jonas Gildebro and Ana Gonzalez-Pinto and Goodwin, {Guy M} and Paul Grof and Hirohiko Harima and Stefanie Hassel and Chantal Henry and Diego Hidalgo-Mazzei and Vaisnvy Kapur and Girish Kunigiri and Beny Lafer and Larsen, {Erik R} and Ute Lewitzka and Licht, {Rasmus W} and Lund, {Anne Hvenegaard} and Blazej Misiak and Scott Monteith and Rodrigo Munoz and Takako Nakanotani and Nielsen, {Ren{\'e} E} and Claire O'Donovan and Yasushi Okamura and Yamima Osher and Patryk Piotrowski and Andreas Reif and Philipp Ritter and Rybakowski, {Janusz K} and Kemal Sagduyu and Brett Sawchuk and Elon Schwartz and Scippa, {{\^A}ngela M} and Claire Slaney and Sulaiman, {Ahmad H} and Kirsi Suominen and Aleksandra Suwalska and Peter Tam and Yoshitaka Tatebayashi and Leonardo Tondo and Eduard Vieta and Maj Vinberg and Biju Viswanath and Julia Volkert and Mark Zetin and Whybrow, {Peter C} and Michael Bauer",

year = "2016",

doi = "10.1016/j.psychres.2016.05.055",

language = "English",

volume = "242",

pages = "388--394",

journal = "Psychiatry Research",

issn = "0165-1781",

publisher = "Elsevier",

}

Bauer, R, Conell, J, Glenn, T, Alda, M, Ardau, R, Baune, BT, Berk, M, Bersudsky, Y, Bilderbeck, A, Bocchetta, A, Bossini, L, Castro, AMP, Cheung, EY, Chillotti, C, Choppin, S, Del Zompo, M, Dias, R, Dodd, S, Duffy, A, Etain, B, Fagiolini, A, Hernandez, MF, Garnham, J, Geddes, J, Gildebro, J, Gonzalez-Pinto, A, Goodwin, GM, Grof, P, Harima, H, Hassel, S, Henry, C, Hidalgo-Mazzei, D, Kapur, V, Kunigiri, G, Lafer, B, Larsen, ER, Lewitzka, U, Licht, RW, Lund, AH, Misiak, B, Monteith, S, Munoz, R, Nakanotani, T, Nielsen, RE, O'Donovan, C, Okamura, Y, Osher, Y, Piotrowski, P, Reif, A, Ritter, P, Rybakowski, JK, Sagduyu, K, Sawchuk, B, Schwartz, E, Scippa, ÂM, Slaney, C, Sulaiman, AH, Suominen, K, Suwalska, A, Tam, P, Tatebayashi, Y, Tondo, L, Vieta, E, Vinberg, M, Viswanath, B, Volkert, J, Zetin, M, Whybrow, PC & Bauer, M 2016, 'Internet use by patients with bipolar disorder: Results from an international multisite survey', Psychiatry Research, vol. 242, pp. 388-394. https://doi.org/10.1016/j.psychres.2016.05.055

TY - JOUR

T1 - Internet use by patients with bipolar disorder

T2 - Results from an international multisite survey

AU - Bauer, Rita

AU - Conell, Jörn

AU - Glenn, Tasha

AU - Alda, Martin

AU - Ardau, Raffaella

AU - Baune, Bernhard T

AU - Berk, Michael

AU - Bersudsky, Yuly

AU - Bilderbeck, Amy

AU - Bocchetta, Alberto

AU - Bossini, Letizia

AU - Castro, Angela M Paredes

AU - Cheung, Eric Yw

AU - Chillotti, Caterina

AU - Choppin, Sabine

AU - Del Zompo, Maria

AU - Dias, Rodrigo

AU - Dodd, Seetal

AU - Duffy, Anne

AU - Etain, Bruno

AU - Fagiolini, Andrea

AU - Hernandez, Miryam Fernández

AU - Garnham, Julie

AU - Geddes, John

AU - Gildebro, Jonas

AU - Gonzalez-Pinto, Ana

AU - Goodwin, Guy M

AU - Grof, Paul

AU - Harima, Hirohiko

AU - Hassel, Stefanie

AU - Henry, Chantal

AU - Hidalgo-Mazzei, Diego

AU - Kapur, Vaisnvy

AU - Kunigiri, Girish

AU - Lafer, Beny

AU - Larsen, Erik R

AU - Lewitzka, Ute

AU - Licht, Rasmus W

AU - Lund, Anne Hvenegaard

AU - Misiak, Blazej

AU - Monteith, Scott

AU - Munoz, Rodrigo

AU - Nakanotani, Takako

AU - Nielsen, René E

AU - O'Donovan, Claire

AU - Okamura, Yasushi

AU - Osher, Yamima

AU - Piotrowski, Patryk

AU - Reif, Andreas

AU - Ritter, Philipp

AU - Rybakowski, Janusz K

AU - Sagduyu, Kemal

AU - Sawchuk, Brett

AU - Schwartz, Elon

AU - Scippa, Ângela M

AU - Slaney, Claire

AU - Sulaiman, Ahmad H

AU - Suominen, Kirsi

AU - Suwalska, Aleksandra

AU - Tam, Peter

AU - Tatebayashi, Yoshitaka

AU - Tondo, Leonardo

AU - Vieta, Eduard

AU - Vinberg, Maj

AU - Viswanath, Biju

AU - Volkert, Julia

AU - Zetin, Mark

AU - Whybrow, Peter C

AU - Bauer, Michael

PY - 2016

Y1 - 2016

N2 - There is considerable international interest in online education of patients with bipolar disorder, yet little understanding of how patients use the Internet and other sources to seek information. 1171 patients with a diagnosis of bipolar disorder in 17 countries completed a paper-based, anonymous survey. 81% of the patients used the Internet, a percentage similar to the general public. Older age, less education, and challenges in country telecommunications infrastructure and demographics decreased the odds of using the Internet. About 78% of the Internet users looked online for information on bipolar disorder or 63% of the total sample. More years of education in relation to the country mean, and feeling very confident about managing life decreased the odds of seeking information on bipolar disorder online, while having attended support groups increased the odds. Patients who looked online for information on bipolar disorder consulted medical professionals plus a mean of 2.3 other information sources such as books, physician handouts, and others with bipolar disorder. Patients not using the Internet consulted medical professionals plus a mean of 1.6 other information sources. The percentage of patients with bipolar disorder who use the Internet is about the same as the general public. Other information sources remain important.

AB - There is considerable international interest in online education of patients with bipolar disorder, yet little understanding of how patients use the Internet and other sources to seek information. 1171 patients with a diagnosis of bipolar disorder in 17 countries completed a paper-based, anonymous survey. 81% of the patients used the Internet, a percentage similar to the general public. Older age, less education, and challenges in country telecommunications infrastructure and demographics decreased the odds of using the Internet. About 78% of the Internet users looked online for information on bipolar disorder or 63% of the total sample. More years of education in relation to the country mean, and feeling very confident about managing life decreased the odds of seeking information on bipolar disorder online, while having attended support groups increased the odds. Patients who looked online for information on bipolar disorder consulted medical professionals plus a mean of 2.3 other information sources such as books, physician handouts, and others with bipolar disorder. Patients not using the Internet consulted medical professionals plus a mean of 1.6 other information sources. The percentage of patients with bipolar disorder who use the Internet is about the same as the general public. Other information sources remain important.

U2 - 10.1016/j.psychres.2016.05.055

DO - 10.1016/j.psychres.2016.05.055

M3 - Journal article

C2 - 27391371

SN - 0165-1781

VL - 242

SP - 388

EP - 394

JO - Psychiatry Research

JF - Psychiatry Research

ER -

Internet use by patients with bipolar disorder: Results from an international multisite survey

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