Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system

Stephanie Githa Nadarajah; Peder Walz Pedersen; Bastian Ilsø Hougaard; Hendrik Knoche

doi:10.1145/3347444.3356237

Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system

Stephanie Githa Nadarajah, Peder Walz Pedersen, Bastian Ilsø Hougaard, Hendrik Knoche

Publikation: Bidrag til bog/antologi/rapport/konference proceeding › Konferenceartikel i proceeding › Forskning › peer review

6 Citationer (Scopus)

316 Downloads (Pure)

Abstract

An increasing number telehealth systems continuously collect selfreported data from patients. Objective and subjective collection of health data facilitates early detection and treatment of chronic conditions, but patient needs in these telehealth contexts are poorly understood. It is for example not clear how to support patients’ reflection on their daily self-reported data. Inadequate support can result in fragmented daily health monitoring and poor adherence. This paper contributes 1) a synthesis of the related but hitherto disjunct personal informatics literature on self-tracking and 2) an indepth field study on how six people suffering chronic obstructive pulmonary disease (COPD) used a telehealth system as part oftheir health self-tracking. Our analysis showed that a telehealth solution which relegated patients to mere data suppliers missed outon opportunities to address user needs. We extended Li’s 5-stage model to show where reflection manifested when interacting with the telehealth system.

Originalsprog	Engelsk
Titel	HealthMedia 2019 - Proceedings of the 4th International Workshop on Multimedia for Personal Health and Health Care, co-located with MM 2019
Antal sider	7
Forlag	Association for Computing Machinery (ACM)
Publikationsdato	15 okt. 2019
Udgave	HealthMedia '19
Sider	2-8
ISBN (Elektronisk)	978-1-4503-6914-5
DOI	https://doi.org/10.1145/3347444.3356237
Status	Udgivet - 15 okt. 2019
Begivenhed	International Workshop on Multimedia for Personal Health & Health Care - Nice, Frankrig Varighed: 21 okt. 2019 → 21 okt. 2019 Konferencens nummer: 4

Konference

Konference	International Workshop on Multimedia for Personal Health & Health Care
Nummer	4
Land/Område	Frankrig
By	Nice
Periode	21/10/2019 → 21/10/2019

Adgang til dokumentet

10.1145/3347444.3356237Licens: Andet

AmICoughingMoreThanUsualAccepteret manuskript, 9,82 MBLicens: CC BY-NC 4.0

AUB Link

Søg efter materialet i Aalborg Universitetsbiblioteks søgemaskine

Andre filer og links

http://www.scopus.com/inward/record.url?scp=85074836906&partnerID=8YFLogxK

1 Gæsteforelæsning

Forskning i Fremtidens Digitale Hjælpemidler
Hougaard, B. I. (Foredragsholder)
24 sep. 2024
Aktivitet: Foredrag og mundtlige bidrag › Gæsteforelæsning

6 Citationer
1 Konferenceartikel i proceeding
1 Paper uden forlag/tidsskrift
1 Tidsskriftartikel

The Guilty Game Designer: Are Games Data Generators or Storytellers?
Hougaard, B. I. & Knoche, H., 14 okt. 2024, s. 1-2. 2 s.
Publikation: Konferencebidrag uden forlag/tidsskrift › Paper uden forlag/tidsskrift › Forskning › peer review

Åben adgang
Fil
Telling the Story Right: How Therapists Aid Stroke Patients Interpret Personal Visualized Game Performance Data
Hougaard, B. I. & Knoche, H., 20 maj 2019, Proceedings of the 13th EAI International Conference on Pervasive Computing Technologies for Healthcare, PervasiveHealth 2019. Association for Computing Machinery (ACM), s. 435-443 9 s.
Publikation: Bidrag til bog/antologi/rapport/konference proceeding › Konferenceartikel i proceeding › Forskning › peer review

Åben adgang
Fil
4 Citationer (Scopus)

318 Downloads (Pure)
How annotated visualizations in self-care technology supported a stroke survivor in goal setting and reflection
Hougaard, B. I. & Knoche, H., dec. 2017, I: EAI Endorsed Transactions on Serious Games. 17, 12
Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › peer review

Åben adgang
Fil
273 Downloads (Pure)

Citationsformater

Nadarajah, S. G., Pedersen, P. W., Hougaard, B. I., & Knoche, H. (2019). Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system. I HealthMedia 2019 - Proceedings of the 4th International Workshop on Multimedia for Personal Health and Health Care, co-located with MM 2019 (HealthMedia '19 udg., s. 2-8). Association for Computing Machinery (ACM). https://doi.org/10.1145/3347444.3356237

Nadarajah, Stephanie Githa ; Pedersen, Peder Walz ; Hougaard, Bastian Ilsø et al. / Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system. HealthMedia 2019 - Proceedings of the 4th International Workshop on Multimedia for Personal Health and Health Care, co-located with MM 2019. HealthMedia '19. udg. Association for Computing Machinery (ACM), 2019. s. 2-8

@inproceedings{020024edcb2947b7a1465afd835ead72,

title = "Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system",

abstract = "An increasing number telehealth systems continuously collect selfreported data from patients. Objective and subjective collection of health data facilitates early detection and treatment of chronic conditions, but patient needs in these telehealth contexts are poorly understood. It is for example not clear how to support patients{\textquoteright} reflection on their daily self-reported data. Inadequate support can result in fragmented daily health monitoring and poor adherence. This paper contributes 1) a synthesis of the related but hitherto disjunct personal informatics literature on self-tracking and 2) an indepth field study on how six people suffering chronic obstructive pulmonary disease (COPD) used a telehealth system as part oftheir health self-tracking. Our analysis showed that a telehealth solution which relegated patients to mere data suppliers missed outon opportunities to address user needs. We extended Li{\textquoteright}s 5-stage model to show where reflection manifested when interacting with the telehealth system.",

keywords = "COPD, Patient-reported outcomes, Personal informatics, Quantified self, Reflection, Self-tracking, Tele-health, Telecare",

author = "Nadarajah, {Stephanie Githa} and Pedersen, {Peder Walz} and Hougaard, {Bastian Ils{\o}} and Hendrik Knoche",

year = "2019",

month = oct,

day = "15",

doi = "10.1145/3347444.3356237",

language = "English",

pages = "2--8",

booktitle = "HealthMedia 2019 - Proceedings of the 4th International Workshop on Multimedia for Personal Health and Health Care, co-located with MM 2019",

publisher = "Association for Computing Machinery (ACM)",

address = "United States",

edition = "HealthMedia '19",

note = "International Workshop on Multimedia for Personal Health & Health Care, HealthMedia ; Conference date: 21-10-2019 Through 21-10-2019",

}

Nadarajah, SG, Pedersen, PW, Hougaard, BI & Knoche, H 2019, Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system. i HealthMedia 2019 - Proceedings of the 4th International Workshop on Multimedia for Personal Health and Health Care, co-located with MM 2019. HealthMedia '19 udg, Association for Computing Machinery (ACM), s. 2-8, International Workshop on Multimedia for Personal Health & Health Care, Nice, Frankrig, 21/10/2019. https://doi.org/10.1145/3347444.3356237

Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system. / Nadarajah, Stephanie Githa; Pedersen, Peder Walz; Hougaard, Bastian Ilsø et al.
HealthMedia 2019 - Proceedings of the 4th International Workshop on Multimedia for Personal Health and Health Care, co-located with MM 2019. HealthMedia '19. udg. Association for Computing Machinery (ACM), 2019. s. 2-8.

Publikation: Bidrag til bog/antologi/rapport/konference proceeding › Konferenceartikel i proceeding › Forskning › peer review

TY - GEN

T1 - Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system

AU - Nadarajah, Stephanie Githa

AU - Pedersen, Peder Walz

AU - Hougaard, Bastian Ilsø

AU - Knoche, Hendrik

N1 - Conference code: 4

PY - 2019/10/15

Y1 - 2019/10/15

N2 - An increasing number telehealth systems continuously collect selfreported data from patients. Objective and subjective collection of health data facilitates early detection and treatment of chronic conditions, but patient needs in these telehealth contexts are poorly understood. It is for example not clear how to support patients’ reflection on their daily self-reported data. Inadequate support can result in fragmented daily health monitoring and poor adherence. This paper contributes 1) a synthesis of the related but hitherto disjunct personal informatics literature on self-tracking and 2) an indepth field study on how six people suffering chronic obstructive pulmonary disease (COPD) used a telehealth system as part oftheir health self-tracking. Our analysis showed that a telehealth solution which relegated patients to mere data suppliers missed outon opportunities to address user needs. We extended Li’s 5-stage model to show where reflection manifested when interacting with the telehealth system.

AB - An increasing number telehealth systems continuously collect selfreported data from patients. Objective and subjective collection of health data facilitates early detection and treatment of chronic conditions, but patient needs in these telehealth contexts are poorly understood. It is for example not clear how to support patients’ reflection on their daily self-reported data. Inadequate support can result in fragmented daily health monitoring and poor adherence. This paper contributes 1) a synthesis of the related but hitherto disjunct personal informatics literature on self-tracking and 2) an indepth field study on how six people suffering chronic obstructive pulmonary disease (COPD) used a telehealth system as part oftheir health self-tracking. Our analysis showed that a telehealth solution which relegated patients to mere data suppliers missed outon opportunities to address user needs. We extended Li’s 5-stage model to show where reflection manifested when interacting with the telehealth system.

KW - COPD

KW - Patient-reported outcomes

KW - Personal informatics

KW - Quantified self

KW - Reflection

KW - Self-tracking

KW - Tele-health

KW - Telecare

UR - http://www.scopus.com/inward/record.url?scp=85074836906&partnerID=8YFLogxK

U2 - 10.1145/3347444.3356237

DO - 10.1145/3347444.3356237

M3 - Article in proceeding

SP - 2

EP - 8

BT - HealthMedia 2019 - Proceedings of the 4th International Workshop on Multimedia for Personal Health and Health Care, co-located with MM 2019

PB - Association for Computing Machinery (ACM)

T2 - International Workshop on Multimedia for Personal Health & Health Care

Y2 - 21 October 2019 through 21 October 2019

ER -

Nadarajah SG, Pedersen PW, Hougaard BI , Knoche H. Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system. I HealthMedia 2019 - Proceedings of the 4th International Workshop on Multimedia for Personal Health and Health Care, co-located with MM 2019. HealthMedia '19 udg. Association for Computing Machinery (ACM). 2019. s. 2-8 doi: 10.1145/3347444.3356237

Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system

Abstract

Konference

Adgang til dokumentet

AUB Link

Andre filer og links

Fingeraftryk

Aktiviteter

Forskning i Fremtidens Digitale Hjælpemidler

Publikation

The Guilty Game Designer: Are Games Data Generators or Storytellers?

Telling the Story Right: How Therapists Aid Stroke Patients Interpret Personal Visualized Game Performance Data

How annotated visualizations in self-care technology supported a stroke survivor in goal setting and reflection

Citationsformater