Design of a Protocol and Psychometric Evaluation Questionnaires for a National PRO Diabetes Multisector Pilot Study in Denmark

Søren E. Skovlund; Lise Boel; Nina C. Balk-Møller; Pernille M. Højholt; Dorthe B. Berthelsen; Charlotte Glümer; Hans Perrild; Danielle M. Hessler; Sherrie H. Kaplan; Poul Erik O. Jakobsen; Niels Ejskjaer

doi:10.2337/db20-754-P

Design of a Protocol and Psychometric Evaluation Questionnaires for a National PRO Diabetes Multisector Pilot Study in Denmark

Søren E. Skovlund, Lise Boel, Nina C. Balk-Møller, Pernille M. Højholt, Dorthe B. Berthelsen, Charlotte Glümer, Hans Perrild, Danielle M. Hessler, Sherrie H. Kaplan, Poul Erik O. Jakobsen, Niels Ejskjaer

Publikation: Bidrag til tidsskrift › Konferenceabstrakt i tidsskrift › Forskning › peer review

Abstract

Aim: To develop a protocol and set of purpose-built psychometric PRO evaluation questionnaires for a national multi-sector study to evaluate feasibility, acceptability, validity, barriers, facilitators and perceived value of the National Danish PRO diabetes intervention (PRO diabetes questionnaire and dialogue tool) in Denmark.Methods: The protocol was designed through a participatory process with People With Diabetes (PWD), multi-disciplinary representatives of diabetes centres and municipality diabetes rehabilitation centres from 3 regions of Denmark. Hypotheses and assessment tools were guided by formative qualitative research. The intervention involved that PWD fill out the PROM prior to their visit and the Health Care Professional (HCP) uses a PRO IT dialogue tool to collaboratively evaluate needs and plan care.Results: The pragmatic mixed-methods study protocol involved hypothesis testing and exploratory research: 1) PRO-DIA-READY Scales for Clinic and HCP PRO-Diabetes Readiness (incl. structural/process indicators of person-centred care). 2) 6-item PRO-EVAL-P Scale completed by PWD after the PROM. 3) 8-item PROCON-EVAL-HCP and 13-item PROCON-EVAL-PWD scales completed by HCPs and PWD after the visit, 4) Clinician rating scales of PROM validity 5) Semi-structured interview/group workshop guides for PWD, Caregivers (CG), multi-disciplinary HCPs, and administrators based on RE-AIM: Reach, Effectiveness, Adoption, Implementation and Maintenance, 6) HCP/PWD Follow-Up Impact Questionnaires (incl. active participation, person-centred care, care utilisation and outcomes). Newly designed evaluation scales were analyzed psychometrically.Conclusions: A protocol and new psychometric assessment tools for evaluation of validity, readiness, acceptability and impact of PRO in diabetes care were developed and successfully applied in large scale in Denmark. The new tools are available for comparative PRO research studies.Disclosure S.E. Skovlund: None. L. Boel: None. N.C. Balk-Møller: None. P.M. Højholt: None. D.B. Berthelsen: None. C. Glümer: None. H. Perrild: None. D.M. Hessler: Consultant; Self; Eli Lilly and Company. S.H. kaplan: None. P.O. Jakobsen: None. N. Ejskjaer: None.Funding Danish Health Data Board

Originalsprog	Engelsk
Artikelnummer	754-P
Tidsskrift	Diabetes
Vol/bind	69
Udgave nummer	Supp. 1
ISSN	0012-1797
DOI	https://doi.org/10.2337/db20-754-P
Status	Udgivet - jun. 2020
Begivenhed	American Diabetes Association (ADA) 80th Scientific Sessions - Virtuel conference Varighed: 12 jun. 2020 → 16 jun. 2020 Konferencens nummer: 80 https://ada.ondemand.org/2020virtualmeeting/

Konference

Konference	American Diabetes Association (ADA) 80th Scientific Sessions
Nummer	80
Lokation	Virtuel conference
Periode	12/06/2020 → 16/06/2020
Internetadresse	https://ada.ondemand.org/2020virtualmeeting/

Adgang til dokumentet

10.2337/db20-754-P

https://diabetes.diabetesjournals.org/content/69/Supplement_1/754-P

AUB Link

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Digitalt PRO-værktøj viser, hvad der giver værdi for personer med diabetes
Niels Ejskjær
10/06/2022
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Presse/medie

Citationsformater

Skovlund, S. E., Boel, L., Balk-Møller, N. C., Højholt, P. M., Berthelsen, D. B., Glümer, C., Perrild, H., Hessler, D. M., Kaplan, S. H., Jakobsen, P. E. O., & Ejskjaer, N. (2020). Design of a Protocol and Psychometric Evaluation Questionnaires for a National PRO Diabetes Multisector Pilot Study in Denmark. Diabetes, 69(Supp. 1), Artikel 754-P. https://doi.org/10.2337/db20-754-P

@article{a44f3b80b1674d369e2c6bcb715accbc,

title = "Design of a Protocol and Psychometric Evaluation Questionnaires for a National PRO Diabetes Multisector Pilot Study in Denmark",

abstract = "Aim: To develop a protocol and set of purpose-built psychometric PRO evaluation questionnaires for a national multi-sector study to evaluate feasibility, acceptability, validity, barriers, facilitators and perceived value of the National Danish PRO diabetes intervention (PRO diabetes questionnaire and dialogue tool) in Denmark.Methods: The protocol was designed through a participatory process with People With Diabetes (PWD), multi-disciplinary representatives of diabetes centres and municipality diabetes rehabilitation centres from 3 regions of Denmark. Hypotheses and assessment tools were guided by formative qualitative research. The intervention involved that PWD fill out the PROM prior to their visit and the Health Care Professional (HCP) uses a PRO IT dialogue tool to collaboratively evaluate needs and plan care.Results: The pragmatic mixed-methods study protocol involved hypothesis testing and exploratory research: 1) PRO-DIA-READY Scales for Clinic and HCP PRO-Diabetes Readiness (incl. structural/process indicators of person-centred care). 2) 6-item PRO-EVAL-P Scale completed by PWD after the PROM. 3) 8-item PROCON-EVAL-HCP and 13-item PROCON-EVAL-PWD scales completed by HCPs and PWD after the visit, 4) Clinician rating scales of PROM validity 5) Semi-structured interview/group workshop guides for PWD, Caregivers (CG), multi-disciplinary HCPs, and administrators based on RE-AIM: Reach, Effectiveness, Adoption, Implementation and Maintenance, 6) HCP/PWD Follow-Up Impact Questionnaires (incl. active participation, person-centred care, care utilisation and outcomes). Newly designed evaluation scales were analyzed psychometrically.Conclusions: A protocol and new psychometric assessment tools for evaluation of validity, readiness, acceptability and impact of PRO in diabetes care were developed and successfully applied in large scale in Denmark. The new tools are available for comparative PRO research studies.Disclosure S.E. Skovlund: None. L. Boel: None. N.C. Balk-M{\o}ller: None. P.M. H{\o}jholt: None. D.B. Berthelsen: None. C. Gl{\"u}mer: None. H. Perrild: None. D.M. Hessler: Consultant; Self; Eli Lilly and Company. S.H. kaplan: None. P.O. Jakobsen: None. N. Ejskjaer: None.Funding Danish Health Data Board",

author = "Skovlund, {S{\o}ren E.} and Lise Boel and Balk-M{\o}ller, {Nina C.} and H{\o}jholt, {Pernille M.} and Berthelsen, {Dorthe B.} and Charlotte Gl{\"u}mer and Hans Perrild and Hessler, {Danielle M.} and Kaplan, {Sherrie H.} and Jakobsen, {Poul Erik O.} and Niels Ejskjaer",

year = "2020",

month = jun,

doi = "10.2337/db20-754-P",

language = "English",

volume = "69",

journal = "Diabetes",

issn = "0012-1797",

publisher = "American Diabetes Association",

number = "Supp. 1",

note = "American Diabetes Association (ADA) 80th Scientific Sessions ; Conference date: 12-06-2020 Through 16-06-2020",

url = "https://ada.ondemand.org/2020virtualmeeting/",

}

TY - ABST

T1 - Design of a Protocol and Psychometric Evaluation Questionnaires for a National PRO Diabetes Multisector Pilot Study in Denmark

AU - Skovlund, Søren E.

AU - Boel, Lise

AU - Balk-Møller, Nina C.

AU - Højholt, Pernille M.

AU - Berthelsen, Dorthe B.

AU - Glümer, Charlotte

AU - Perrild, Hans

AU - Hessler, Danielle M.

AU - Kaplan, Sherrie H.

AU - Jakobsen, Poul Erik O.

AU - Ejskjaer, Niels

N1 - Conference code: 80

PY - 2020/6

Y1 - 2020/6

N2 - Aim: To develop a protocol and set of purpose-built psychometric PRO evaluation questionnaires for a national multi-sector study to evaluate feasibility, acceptability, validity, barriers, facilitators and perceived value of the National Danish PRO diabetes intervention (PRO diabetes questionnaire and dialogue tool) in Denmark.Methods: The protocol was designed through a participatory process with People With Diabetes (PWD), multi-disciplinary representatives of diabetes centres and municipality diabetes rehabilitation centres from 3 regions of Denmark. Hypotheses and assessment tools were guided by formative qualitative research. The intervention involved that PWD fill out the PROM prior to their visit and the Health Care Professional (HCP) uses a PRO IT dialogue tool to collaboratively evaluate needs and plan care.Results: The pragmatic mixed-methods study protocol involved hypothesis testing and exploratory research: 1) PRO-DIA-READY Scales for Clinic and HCP PRO-Diabetes Readiness (incl. structural/process indicators of person-centred care). 2) 6-item PRO-EVAL-P Scale completed by PWD after the PROM. 3) 8-item PROCON-EVAL-HCP and 13-item PROCON-EVAL-PWD scales completed by HCPs and PWD after the visit, 4) Clinician rating scales of PROM validity 5) Semi-structured interview/group workshop guides for PWD, Caregivers (CG), multi-disciplinary HCPs, and administrators based on RE-AIM: Reach, Effectiveness, Adoption, Implementation and Maintenance, 6) HCP/PWD Follow-Up Impact Questionnaires (incl. active participation, person-centred care, care utilisation and outcomes). Newly designed evaluation scales were analyzed psychometrically.Conclusions: A protocol and new psychometric assessment tools for evaluation of validity, readiness, acceptability and impact of PRO in diabetes care were developed and successfully applied in large scale in Denmark. The new tools are available for comparative PRO research studies.Disclosure S.E. Skovlund: None. L. Boel: None. N.C. Balk-Møller: None. P.M. Højholt: None. D.B. Berthelsen: None. C. Glümer: None. H. Perrild: None. D.M. Hessler: Consultant; Self; Eli Lilly and Company. S.H. kaplan: None. P.O. Jakobsen: None. N. Ejskjaer: None.Funding Danish Health Data Board

AB - Aim: To develop a protocol and set of purpose-built psychometric PRO evaluation questionnaires for a national multi-sector study to evaluate feasibility, acceptability, validity, barriers, facilitators and perceived value of the National Danish PRO diabetes intervention (PRO diabetes questionnaire and dialogue tool) in Denmark.Methods: The protocol was designed through a participatory process with People With Diabetes (PWD), multi-disciplinary representatives of diabetes centres and municipality diabetes rehabilitation centres from 3 regions of Denmark. Hypotheses and assessment tools were guided by formative qualitative research. The intervention involved that PWD fill out the PROM prior to their visit and the Health Care Professional (HCP) uses a PRO IT dialogue tool to collaboratively evaluate needs and plan care.Results: The pragmatic mixed-methods study protocol involved hypothesis testing and exploratory research: 1) PRO-DIA-READY Scales for Clinic and HCP PRO-Diabetes Readiness (incl. structural/process indicators of person-centred care). 2) 6-item PRO-EVAL-P Scale completed by PWD after the PROM. 3) 8-item PROCON-EVAL-HCP and 13-item PROCON-EVAL-PWD scales completed by HCPs and PWD after the visit, 4) Clinician rating scales of PROM validity 5) Semi-structured interview/group workshop guides for PWD, Caregivers (CG), multi-disciplinary HCPs, and administrators based on RE-AIM: Reach, Effectiveness, Adoption, Implementation and Maintenance, 6) HCP/PWD Follow-Up Impact Questionnaires (incl. active participation, person-centred care, care utilisation and outcomes). Newly designed evaluation scales were analyzed psychometrically.Conclusions: A protocol and new psychometric assessment tools for evaluation of validity, readiness, acceptability and impact of PRO in diabetes care were developed and successfully applied in large scale in Denmark. The new tools are available for comparative PRO research studies.Disclosure S.E. Skovlund: None. L. Boel: None. N.C. Balk-Møller: None. P.M. Højholt: None. D.B. Berthelsen: None. C. Glümer: None. H. Perrild: None. D.M. Hessler: Consultant; Self; Eli Lilly and Company. S.H. kaplan: None. P.O. Jakobsen: None. N. Ejskjaer: None.Funding Danish Health Data Board

U2 - 10.2337/db20-754-P

DO - 10.2337/db20-754-P

M3 - Conference abstract in journal

SN - 0012-1797

VL - 69

JO - Diabetes

JF - Diabetes

IS - Supp. 1

M1 - 754-P

T2 - American Diabetes Association (ADA) 80th Scientific Sessions

Y2 - 12 June 2020 through 16 June 2020

ER -

Design of a Protocol and Psychometric Evaluation Questionnaires for a National PRO Diabetes Multisector Pilot Study in Denmark

Abstract

Konference

Adgang til dokumentet

AUB Link

Presse/Medier

Digitalt PRO-værktøj viser, hvad der giver værdi for personer med diabetes

Citationsformater