PAINSTORIES – exploring the challenges, barriers and self-management needs in adolescents with knee pain: a qualitative study with semi-structured interviews

Bidragets oversatte titel: PAINSTORIES - en afdækning af unge med knæsmerters udfordringer, barrierer og egenomsorgsbehov via semi-strukturerede forskningsinterviews

Publikation: Konferencebidrag uden forlag/tidsskriftKonferenceabstrakt til konferenceForskning

Resumé

Introduction:
Adolescent knee pain is common, and is associated with poor prognosis. One obstacle when treating adolescents is ensuring adherence to treatment, and teaching them to manage THEIR knee pain. This study investigates the challenges and barriers of adolescents with knee pain by conceptualizing self-management as problem-based. The aim is to develop a framework for designing patient education resources for this population, supporting the acquisition of self-management skills for everyday life.

Materials and Methods:
14 young adults with long-standing knee pain, that began during adolescence were recruited from the ‘APA2011’-cohort. Informants participated in a single person semi-structured interview, with a recall exercise. Data were recorded, transcribed, and analyzed using ‘The general inductive approach for analyzing qualitative data”, to extract thematic patterns.

Results:
The coding of data revealed a model of 4 main, 10 generic and 27 sub-categories organized around ‘challenges and barriers’. Further coding outlined a hierarchy of clusters, labeled ‘apprehension’, ‘knowledge’, ‘contextual’ and ‘social/value’ -barriers, which constituted challenges participants had to navigate to progress towards mastery of the condition. From this, four learning objectives were identified as ‘acceptance of injury’, ‘familiarization and decision making’, ‘confrontation vs limitation’ and ‘reconceptualization’ which served as the canvas for the adolescents’ self-management at distinct stages of their knee pain

Conclusion:
These preliminary findings indicate that a framework for patient education should not focus on a one-fits-all approach. Emphasis should be on identifying the challenges the adolescent is facing, and aligning learning objectives to these, by providing effective exercises which facilitate the learning process.
OriginalsprogEngelsk
Publikationsdato1 feb. 2018
Antal sider1
StatusUdgivet - 1 feb. 2018
Begivenhed14th Scandinavian Congress of Medicine & Science in Sports - Copenhagen, Danmark
Varighed: 1 feb. 20183 feb. 2018

Konference

Konference14th Scandinavian Congress of Medicine & Science in Sports
LandDanmark
ByCopenhagen
Periode01/02/201803/02/2018

Citer dette

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abstract = "Introduction: Adolescent knee pain is common, and is associated with poor prognosis. One obstacle when treating adolescents is ensuring adherence to treatment, and teaching them to manage THEIR knee pain. This study investigates the challenges and barriers of adolescents with knee pain by conceptualizing self-management as problem-based. The aim is to develop a framework for designing patient education resources for this population, supporting the acquisition of self-management skills for everyday life.Materials and Methods:14 young adults with long-standing knee pain, that began during adolescence were recruited from the ‘APA2011’-cohort. Informants participated in a single person semi-structured interview, with a recall exercise. Data were recorded, transcribed, and analyzed using ‘The general inductive approach for analyzing qualitative data”, to extract thematic patterns.Results:The coding of data revealed a model of 4 main, 10 generic and 27 sub-categories organized around ‘challenges and barriers’. Further coding outlined a hierarchy of clusters, labeled ‘apprehension’, ‘knowledge’, ‘contextual’ and ‘social/value’ -barriers, which constituted challenges participants had to navigate to progress towards mastery of the condition. From this, four learning objectives were identified as ‘acceptance of injury’, ‘familiarization and decision making’, ‘confrontation vs limitation’ and ‘reconceptualization’ which served as the canvas for the adolescents’ self-management at distinct stages of their knee painConclusion:These preliminary findings indicate that a framework for patient education should not focus on a one-fits-all approach. Emphasis should be on identifying the challenges the adolescent is facing, and aligning learning objectives to these, by providing effective exercises which facilitate the learning process.",
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PAINSTORIES – exploring the challenges, barriers and self-management needs in adolescents with knee pain : a qualitative study with semi-structured interviews. / Johansen, Simon Kristoffer; Holden, Sienad; Pourbordbari, Negar; Jensen, Martin Bach; Rathleff, Michael Skovdal.

2018. Abstract fra 14th Scandinavian Congress of Medicine & Science in Sports, Copenhagen, Danmark.

Publikation: Konferencebidrag uden forlag/tidsskriftKonferenceabstrakt til konferenceForskning

TY - ABST

T1 - PAINSTORIES – exploring the challenges, barriers and self-management needs in adolescents with knee pain

T2 - a qualitative study with semi-structured interviews

AU - Johansen, Simon Kristoffer

AU - Holden, Sienad

AU - Pourbordbari, Negar

AU - Jensen, Martin Bach

AU - Rathleff, Michael Skovdal

PY - 2018/2/1

Y1 - 2018/2/1

N2 - Introduction: Adolescent knee pain is common, and is associated with poor prognosis. One obstacle when treating adolescents is ensuring adherence to treatment, and teaching them to manage THEIR knee pain. This study investigates the challenges and barriers of adolescents with knee pain by conceptualizing self-management as problem-based. The aim is to develop a framework for designing patient education resources for this population, supporting the acquisition of self-management skills for everyday life.Materials and Methods:14 young adults with long-standing knee pain, that began during adolescence were recruited from the ‘APA2011’-cohort. Informants participated in a single person semi-structured interview, with a recall exercise. Data were recorded, transcribed, and analyzed using ‘The general inductive approach for analyzing qualitative data”, to extract thematic patterns.Results:The coding of data revealed a model of 4 main, 10 generic and 27 sub-categories organized around ‘challenges and barriers’. Further coding outlined a hierarchy of clusters, labeled ‘apprehension’, ‘knowledge’, ‘contextual’ and ‘social/value’ -barriers, which constituted challenges participants had to navigate to progress towards mastery of the condition. From this, four learning objectives were identified as ‘acceptance of injury’, ‘familiarization and decision making’, ‘confrontation vs limitation’ and ‘reconceptualization’ which served as the canvas for the adolescents’ self-management at distinct stages of their knee painConclusion:These preliminary findings indicate that a framework for patient education should not focus on a one-fits-all approach. Emphasis should be on identifying the challenges the adolescent is facing, and aligning learning objectives to these, by providing effective exercises which facilitate the learning process.

AB - Introduction: Adolescent knee pain is common, and is associated with poor prognosis. One obstacle when treating adolescents is ensuring adherence to treatment, and teaching them to manage THEIR knee pain. This study investigates the challenges and barriers of adolescents with knee pain by conceptualizing self-management as problem-based. The aim is to develop a framework for designing patient education resources for this population, supporting the acquisition of self-management skills for everyday life.Materials and Methods:14 young adults with long-standing knee pain, that began during adolescence were recruited from the ‘APA2011’-cohort. Informants participated in a single person semi-structured interview, with a recall exercise. Data were recorded, transcribed, and analyzed using ‘The general inductive approach for analyzing qualitative data”, to extract thematic patterns.Results:The coding of data revealed a model of 4 main, 10 generic and 27 sub-categories organized around ‘challenges and barriers’. Further coding outlined a hierarchy of clusters, labeled ‘apprehension’, ‘knowledge’, ‘contextual’ and ‘social/value’ -barriers, which constituted challenges participants had to navigate to progress towards mastery of the condition. From this, four learning objectives were identified as ‘acceptance of injury’, ‘familiarization and decision making’, ‘confrontation vs limitation’ and ‘reconceptualization’ which served as the canvas for the adolescents’ self-management at distinct stages of their knee painConclusion:These preliminary findings indicate that a framework for patient education should not focus on a one-fits-all approach. Emphasis should be on identifying the challenges the adolescent is facing, and aligning learning objectives to these, by providing effective exercises which facilitate the learning process.

M3 - Conference abstract for conference

ER -