Participatory Research: A Priority Setting Partnership for Chronic Musculoskeletal Pain in Denmark

KD Lyng; JB Larsen; K Birnie; J Stinson; M Hoegh; AE Olesen; L Arendt-Nielsen; L Ehlers; K Fonager; MB Jensen; H Würtzen; TS Palsson; P Poulin; G Handberg; C Ziegler; LB Møller; J Olsen; L Heise; MS Rathleff

doi:10.1101/2021.12.17.21267948

Participatory Research: A Priority Setting Partnership for Chronic Musculoskeletal Pain in Denmark

KD Lyng, JB Larsen, K Birnie, J Stinson, M Hoegh, AE Olesen, L Arendt-Nielsen, L Ehlers, K Fonager, MB Jensen, H Würtzen, TS Palsson, P Poulin, G Handberg, C Ziegler, LB Møller, J Olsen, L Heise, MS Rathleff

Publikation: Working paper/Preprint › Preprint

Abstract

Background Patient and stakeholder engagements in research have increasingly gained attention in healthcare and healthcare-related research. A common and rigorous approach to establish research priorities based on input from people and stakeholders is the James Lind Alliance Priority Setting Partnership (JLA-PSP). The aim of this study was to establish research priorities for chronic musculoskeletal (MSK) pain by engaging with humans living with chronic MSK pain, relatives to humans living with chronic MSK pain, healthcare professionals (HCP), and researchers working with chronic MSK pain.

Methods This JLA-PSP included a nation-wide survey in Denmark, an interim prioritisation, and an online consensus building workshop. The information gained from this was the basis for developing the final list of specific research priorities within chronic MSK pain.

Results In the initial survey, 1010 respondents (91% people living with chronic MSK pain/relatives, 9% HCPs/researchers) submitted 3121 potential questions. These were summarised into 19 main themes and 36 sub-themes. In the interim prioritisation exercise, 51% people living with pain/relatives and 49% HCPs/researchers reduced the list to 33 research questions prior to the final priority setting workshop. 23 participants attended the online workshop (12 people/relatives, 10 HCPs, and 1 researcher) who reached consensus for the most important research priorities after two rounds of discussion of each question.

Conclusion This study identified several specific research questions generated by people living with chronic MSK pain, relatives, HCPs, and researchers. The stakeholders proposed prioritization of the healthcare system’s ability to support patients, focus on developing coherent pathways between sectors and education for both patients and HCP. These research questions can form the basis for future studies, funders, and be used to align research with end-users’ priorities

Originalsprog	Engelsk
Udgiver	medRxiv
Antal sider	17
DOI	https://doi.org/10.1101/2021.12.17.21267948
Status	Udgivet - 17 dec. 2021

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Participatory research: a Priority Setting Partnership for chronic musculoskeletal pain in Denmark
Lyng, K. D., Larsen, J. B., Birnie, K. A., Stinson, J., Hoegh, M. S., Palsson, T. S., Olesen, A. E., Arendt-Nielsen, L., Ehlers, L. H., Fonager, K., Jensen, M. B., Würtzen, H., Poulin, P. A., Handberg, G., Ziegler, C., Møller, L. B., Olsen, J., Heise, L. & Rathleff, M. S., 25 apr. 2023, I: Scandinavian Journal of Pain. 23, 2, s. 402-415 14 s.
Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › peer review

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Lyng, KD., Larsen, JB., Birnie, K., Stinson, J., Hoegh, M., Olesen, AE., Arendt-Nielsen, L., Ehlers, L., Fonager, K., Jensen, MB., Würtzen, H., Palsson, TS., Poulin, P., Handberg, G., Ziegler, C., Møller, LB., Olsen, J., Heise, L., & Rathleff, MS. (2021). Participatory Research: A Priority Setting Partnership for Chronic Musculoskeletal Pain in Denmark. medRxiv. https://doi.org/10.1101/2021.12.17.21267948

@techreport{bf62b7e040e04ed0ace564f14c7ae135,

title = "Participatory Research: A Priority Setting Partnership for Chronic Musculoskeletal Pain in Denmark",

abstract = "Background Patient and stakeholder engagements in research have increasingly gained attention in healthcare and healthcare-related research. A common and rigorous approach to establish research priorities based on input from people and stakeholders is the James Lind Alliance Priority Setting Partnership (JLA-PSP). The aim of this study was to establish research priorities for chronic musculoskeletal (MSK) pain by engaging with humans living with chronic MSK pain, relatives to humans living with chronic MSK pain, healthcare professionals (HCP), and researchers working with chronic MSK pain.Methods This JLA-PSP included a nation-wide survey in Denmark, an interim prioritisation, and an online consensus building workshop. The information gained from this was the basis for developing the final list of specific research priorities within chronic MSK pain.Results In the initial survey, 1010 respondents (91% people living with chronic MSK pain/relatives, 9% HCPs/researchers) submitted 3121 potential questions. These were summarised into 19 main themes and 36 sub-themes. In the interim prioritisation exercise, 51% people living with pain/relatives and 49% HCPs/researchers reduced the list to 33 research questions prior to the final priority setting workshop. 23 participants attended the online workshop (12 people/relatives, 10 HCPs, and 1 researcher) who reached consensus for the most important research priorities after two rounds of discussion of each question.Conclusion This study identified several specific research questions generated by people living with chronic MSK pain, relatives, HCPs, and researchers. The stakeholders proposed prioritization of the healthcare system{\textquoteright}s ability to support patients, focus on developing coherent pathways between sectors and education for both patients and HCP. These research questions can form the basis for future studies, funders, and be used to align research with end-users{\textquoteright} priorities",

author = "KD Lyng and JB Larsen and K Birnie and J Stinson and M Hoegh and AE Olesen and L Arendt-Nielsen and L Ehlers and K Fonager and MB Jensen and H W{\"u}rtzen and TS Palsson and P Poulin and G Handberg and C Ziegler and LB M{\o}ller and J Olsen and L Heise and MS Rathleff",

year = "2021",

month = dec,

day = "17",

doi = "10.1101/2021.12.17.21267948",

language = "English",

publisher = "medRxiv",

type = "WorkingPaper",

institution = "medRxiv",

}

Lyng, KD , Larsen, JB, Birnie, K, Stinson, J, Hoegh, M , Olesen, AE , Arendt-Nielsen, L, Ehlers, L, Fonager, K , Jensen, MB, Würtzen, H, Palsson, TS, Poulin, P, Handberg, G, Ziegler, C, Møller, LB, Olsen, J, Heise, L & Rathleff, MS 2021 'Participatory Research: A Priority Setting Partnership for Chronic Musculoskeletal Pain in Denmark' medRxiv. https://doi.org/10.1101/2021.12.17.21267948

TY - UNPB

T1 - Participatory Research

T2 - A Priority Setting Partnership for Chronic Musculoskeletal Pain in Denmark

AU - Lyng, KD

AU - Larsen, JB

AU - Birnie, K

AU - Stinson, J

AU - Hoegh, M

AU - Olesen, AE

AU - Arendt-Nielsen, L

AU - Ehlers, L

AU - Fonager, K

AU - Jensen, MB

AU - Würtzen, H

AU - Palsson, TS

AU - Poulin, P

AU - Handberg, G

AU - Ziegler, C

AU - Møller, LB

AU - Olsen, J

AU - Heise, L

AU - Rathleff, MS

PY - 2021/12/17

Y1 - 2021/12/17

N2 - Background Patient and stakeholder engagements in research have increasingly gained attention in healthcare and healthcare-related research. A common and rigorous approach to establish research priorities based on input from people and stakeholders is the James Lind Alliance Priority Setting Partnership (JLA-PSP). The aim of this study was to establish research priorities for chronic musculoskeletal (MSK) pain by engaging with humans living with chronic MSK pain, relatives to humans living with chronic MSK pain, healthcare professionals (HCP), and researchers working with chronic MSK pain.Methods This JLA-PSP included a nation-wide survey in Denmark, an interim prioritisation, and an online consensus building workshop. The information gained from this was the basis for developing the final list of specific research priorities within chronic MSK pain.Results In the initial survey, 1010 respondents (91% people living with chronic MSK pain/relatives, 9% HCPs/researchers) submitted 3121 potential questions. These were summarised into 19 main themes and 36 sub-themes. In the interim prioritisation exercise, 51% people living with pain/relatives and 49% HCPs/researchers reduced the list to 33 research questions prior to the final priority setting workshop. 23 participants attended the online workshop (12 people/relatives, 10 HCPs, and 1 researcher) who reached consensus for the most important research priorities after two rounds of discussion of each question.Conclusion This study identified several specific research questions generated by people living with chronic MSK pain, relatives, HCPs, and researchers. The stakeholders proposed prioritization of the healthcare system’s ability to support patients, focus on developing coherent pathways between sectors and education for both patients and HCP. These research questions can form the basis for future studies, funders, and be used to align research with end-users’ priorities

AB - Background Patient and stakeholder engagements in research have increasingly gained attention in healthcare and healthcare-related research. A common and rigorous approach to establish research priorities based on input from people and stakeholders is the James Lind Alliance Priority Setting Partnership (JLA-PSP). The aim of this study was to establish research priorities for chronic musculoskeletal (MSK) pain by engaging with humans living with chronic MSK pain, relatives to humans living with chronic MSK pain, healthcare professionals (HCP), and researchers working with chronic MSK pain.Methods This JLA-PSP included a nation-wide survey in Denmark, an interim prioritisation, and an online consensus building workshop. The information gained from this was the basis for developing the final list of specific research priorities within chronic MSK pain.Results In the initial survey, 1010 respondents (91% people living with chronic MSK pain/relatives, 9% HCPs/researchers) submitted 3121 potential questions. These were summarised into 19 main themes and 36 sub-themes. In the interim prioritisation exercise, 51% people living with pain/relatives and 49% HCPs/researchers reduced the list to 33 research questions prior to the final priority setting workshop. 23 participants attended the online workshop (12 people/relatives, 10 HCPs, and 1 researcher) who reached consensus for the most important research priorities after two rounds of discussion of each question.Conclusion This study identified several specific research questions generated by people living with chronic MSK pain, relatives, HCPs, and researchers. The stakeholders proposed prioritization of the healthcare system’s ability to support patients, focus on developing coherent pathways between sectors and education for both patients and HCP. These research questions can form the basis for future studies, funders, and be used to align research with end-users’ priorities

U2 - 10.1101/2021.12.17.21267948

DO - 10.1101/2021.12.17.21267948

M3 - Preprint

BT - Participatory Research

PB - medRxiv

ER -

Participatory Research: A Priority Setting Partnership for Chronic Musculoskeletal Pain in Denmark

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Participatory research: a Priority Setting Partnership for chronic musculoskeletal pain in Denmark

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