TY - JOUR
T1 - Patients' knowledge and attitudes regarding living with implantable electronic devices
T2 - results of a multicentre, multinational patient survey conducted by the European Heart Rhythm Association
AU - Haugaa, Kristina Hermann
AU - Potpara, Tatjana S
AU - Boveda, Serge
AU - Deharo, Jean-Calude
AU - Chen, Jian
AU - Dobreanu, Dan
AU - Fumagalli, Stefano
AU - Lenarczyk, Radoslaw
AU - Hernandez Madrid, Antonio
AU - Larsen, Torben Bjerregaard
AU - Sciarrafia, Elena
AU - Taborsky, Milos
AU - Tilz, Roland Richard
AU - Pieragnoli, Paolo
AU - Przybylski, Andrzej
AU - Dagres, Nikolaos
N1 - Published on behalf of the European Society of Cardiology. All rights reserved. © The Author(s) 2017. For permissions, please email: journals.permissions@oup.com.
PY - 2018/2/1
Y1 - 2018/2/1
N2 - The purpose of this patient survey was to analyse the knowledge, experiences, and attitudes regarding cardiac implantable electronic devices (CIED) in patients with pacemakers, implantable cardioverter-defibrillators (ICDs), or cardiac resynchronization devices. Of the 1644 patients with CIEDs from seven European countries, 88% were over 50 years of age. Most patients (90%) knew what device they were implanted with and felt sufficiently informed about the indications for therapy. As many as 42% of patients needed additional information on the battery replacement and limitations in physical activity. The self-reported incidence of complications was 9%, and among these, a quarter of the respondents felt insufficiently informed about the possibility of complications and their management. The majority of patients (83%) were followed by face-to-face visits, which was the most commonly preferred follow-up strategy by the patients. Nearly 75% of the patients reported improved quality of life after device implantation, but about 40% had worries about their device. Less than 20% had discussed with their physician or thought about device handling in the end-of-life circumstances or end-stage disease. Notably, almost 20% of the ICD patients did not wish to answer the question regarding what they wanted to be done with their ICD in case of end-stage disease, indicating the challenges in approaching these issues.
AB - The purpose of this patient survey was to analyse the knowledge, experiences, and attitudes regarding cardiac implantable electronic devices (CIED) in patients with pacemakers, implantable cardioverter-defibrillators (ICDs), or cardiac resynchronization devices. Of the 1644 patients with CIEDs from seven European countries, 88% were over 50 years of age. Most patients (90%) knew what device they were implanted with and felt sufficiently informed about the indications for therapy. As many as 42% of patients needed additional information on the battery replacement and limitations in physical activity. The self-reported incidence of complications was 9%, and among these, a quarter of the respondents felt insufficiently informed about the possibility of complications and their management. The majority of patients (83%) were followed by face-to-face visits, which was the most commonly preferred follow-up strategy by the patients. Nearly 75% of the patients reported improved quality of life after device implantation, but about 40% had worries about their device. Less than 20% had discussed with their physician or thought about device handling in the end-of-life circumstances or end-stage disease. Notably, almost 20% of the ICD patients did not wish to answer the question regarding what they wanted to be done with their ICD in case of end-stage disease, indicating the challenges in approaching these issues.
KW - Cardiac implantable electronic devices
KW - Cardiac resynchronization therapy
KW - Complications
KW - EHRA survey
KW - Implantable cardioverter-defibrillator
KW - Pacemaker
KW - Patient knowledge
KW - Patient preference
UR - http://www.scopus.com/inward/record.url?scp=85041645533&partnerID=8YFLogxK
U2 - 10.1093/europace/eux365
DO - 10.1093/europace/eux365
M3 - Review article
C2 - 29300970
SN - 1099-5129
VL - 20
SP - 386
EP - 391
JO - Europace
JF - Europace
IS - 2
ER -