Psychological Impact and Need for Psychological Care and Support: What Do People with Diabetes and Caregivers Say? Results of a Scientific Survey of 9,869 People with Diabetes and Caregivers in Denmark

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Aim: To characterize the need for and access to psychological care and self-care support for People With Diabetes (PWD) and Caregivers (CG) in Denmark.Methods: The national diabetes survey (Life with Diabetes 2019) was designed by the Danish Diabetes Association, Steno Diabetes Center North, and Aalborg University with PWD and CG to benchmark Impact/daily life, Access to care, technology and services and understand key wishes and priorities. The study used pre-validated, national PRO diabetes and purpose-built Likert items/scales, as well as open-ended items for mixed-methods research. E-mail invites were sent to 38.820 members of the Danish Diabetes Association. Statistics were done with (STATA/SPSS 26) and coding and thematic analysis with (NVIVO12).Results: 9.108 PWD and 761 CG completed the survey: 71 and 26 diabetes. 51 Capital (n=2.753), South (n=2365), Central (n=2.126), Zealand (n=1.490) and North (n=1.082). Age/gender was similar to the general population. Impact: 19diabetes taking up textquotedbllefttoo much of daily lifetextquotedblright). Access: 18242 needed a referral for a psychologist, but had not been offered one. 3621 19.100 free text responses identified detailed problem/improvement areas, notably within: 1) access to new technology, 2) quality of care in primary practice 3) Whole-person care beyond medicine (exercise, diet, mental health).Conclusions: This is the largest nationwide Danish survey to date to quantify as well as qualitatively characterize a major need for better access to psychological and other non-medical diabetes care in Denmark.Disclosure S.E. Skovlund: None. K.A. Nielsen: None. N. Ejskjaer: None.Funding Danish Diabetes Association
Udgave nummerSupplement 1
StatusUdgivet - 2020
BegivenhedAmerican Diabetes Association (ADA) 80th Scientific Sessions - Virtuel conference
Varighed: 12 jun. 202016 jun. 2020
Konferencens nummer: 80


KonferenceAmerican Diabetes Association (ADA) 80th Scientific Sessions
LokationVirtuel conference