Telling the Story Right: How Therapists Aid Stroke Patients Interpret Personal Visualized Game Performance Data

Bastian Ilsø Hougaard; Hendrik Knoche

doi:10.1145/3329189.3329239

Telling the Story Right: How Therapists Aid Stroke Patients Interpret Personal Visualized Game Performance Data

Publikation: Bidrag til bog/antologi/rapport/konference proceeding › Konferenceartikel i proceeding › Forskning › peer review

5 Citationer (Scopus)

362 Downloads (Pure)

Abstract

Data visualizations of training performance can provide patients with insight and motivation to engage in future self-training sessions. Still, patients are in practice prone to misinterpret their data in practice due to lack of health numeracy.
This paper contributes an ethnographic case study of how an occupational therapist employed storytelling
to help 14 sub-acute stroke patients interpret visualizations of their training performance from a cognitive rehabilitation game.
The Trail Making Test based game visualized performance through a timeline, heat maps, and aggregate visualizations co-designed with the therapist.
The interactive visualizations enabled the therapist to strategically order and emphasize information to support patients' understanding of their health.
We provide an analysis of the therapist's storytelling strategy in cognitive training that depended on patient self-awareness. The paper concludes with a discussion of tensions for designing storytelling in visualizations of health data for self-care systems targeted at stroke patients in clinical and home contexts.

Originalsprog	Engelsk
Titel	Proceedings of the 13th EAI International Conference on Pervasive Computing Technologies for Healthcare, PervasiveHealth 2019
Antal sider	9
Forlag	Association for Computing Machinery (ACM)
Publikationsdato	20 maj 2019
Sider	435-443
ISBN (Elektronisk)	9781450361262
DOI	https://doi.org/10.1145/3329189.3329239
Status	Udgivet - 20 maj 2019
Begivenhed	EAI International Conference on Pervasive Computing Technologies for Healthcare - Trento, Italien Varighed: 20 maj 2019 → 23 maj 2019 Konferencens nummer: 13

Konference

Konference	EAI International Conference on Pervasive Computing Technologies for Healthcare
Nummer	13
Land/Område	Italien
By	Trento
Periode	20/05/2019 → 23/05/2019

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10.1145/3329189.3329239Licens: Andet

PH19_TellingTheStoryRight_AuthorsVersionAccepteret manuskript, 2,9 MBLicens: CC BY-ND 4.0

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3 Afsluttet

IRENE COST action CA18118
Mikulik, R. (PI (principal investigator)), Svobodova, V. (Projektkoordinator) & Knoche, H. (Projektdeltager)
European Cooperation in Science and Technology
13/11/2018 → 11/10/2023
Projekter: Projekt › Forskning
IRENE: Implementation Research Network in Stroke Care Quality, COST action CA18118
Mikulik, R. (PI (principal investigator)), Knoche, H. (Projektdeltager), Hougaard, B. I. (Projektdeltager), Skovfoged, M. M. (Projektdeltager), Kristensen, M. S. (Projektdeltager), Nemcova, V. (Projektdeltager) & Ziadeh, H. (Projektdeltager)
12/04/2018 → 11/10/2023
Projekter: Projekt › Forskning
RehApps: Rehab apps for cognitive disabilities
Knoche, H. (PI (principal investigator)) & Hald, K. (Projektleder)
01/09/2014 → 31/08/2020
Projekter: Projekt › Forskning

1 Organisering af eller deltagelse i workshop, kursus, seminar, udstilling eller lignende
1 Gæsteforelæsning

Når Innovation Lykkes – på tværs 2025
Hougaard, B. I. (Deltager)
9 apr. 2025
Aktivitet: Deltagelse i faglig begivenhed › Organisering af eller deltagelse i workshop, kursus, seminar, udstilling eller lignende
Forskning i Fremtidens Digitale Hjælpemidler
Hougaard, B. I. (Foredragsholder)
24 sep. 2024
Aktivitet: Foredrag og mundtlige bidrag › Gæsteforelæsning

5 Citationer
3 Konferenceartikel i proceeding
1 Paper uden forlag/tidsskrift
1 Tidsskriftartikel

The Guilty Game Designer: Are Games Data Generators or Storytellers?
Hougaard, B. I. & Knoche, H., 14 okt. 2024, s. 1-2. 2 s.
Publikation: Konferencebidrag uden forlag/tidsskrift › Paper uden forlag/tidsskrift › Forskning › peer review

Åben adgang
Fil
Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system
Nadarajah, S. G., Pedersen, P. W., Hougaard, B. I. & Knoche, H., 15 okt. 2019, HealthMedia 2019 - Proceedings of the 4th International Workshop on Multimedia for Personal Health and Health Care, co-located with MM 2019. HealthMedia '19 udg. Association for Computing Machinery (ACM), s. 2-8 7 s.
Publikation: Bidrag til bog/antologi/rapport/konference proceeding › Konferenceartikel i proceeding › Forskning › peer review

Åben adgang
Fil
6 Citationer (Scopus)

345 Downloads (Pure)
How annotated visualizations in self-care technology supported a stroke survivor in goal setting and reflection
Hougaard, B. I. & Knoche, H., dec. 2017, I: EAI Endorsed Transactions on Serious Games. 17, 12
Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › peer review

Åben adgang
Fil
297 Downloads (Pure)

Citationsformater

Hougaard, B. I., & Knoche, H. (2019). Telling the Story Right: How Therapists Aid Stroke Patients Interpret Personal Visualized Game Performance Data. I Proceedings of the 13th EAI International Conference on Pervasive Computing Technologies for Healthcare, PervasiveHealth 2019 (s. 435-443). Association for Computing Machinery (ACM). https://doi.org/10.1145/3329189.3329239

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title = "Telling the Story Right: How Therapists Aid Stroke Patients Interpret Personal Visualized Game Performance Data",

abstract = "Data visualizations of training performance can provide patients with insight and motivation to engage in future self-training sessions. Still, patients are in practice prone to misinterpret their data in practice due to lack of health numeracy.This paper contributes an ethnographic case study of how an occupational therapist employed storytelling to help 14 sub-acute stroke patients interpret visualizations of their training performance from a cognitive rehabilitation game.The Trail Making Test based game visualized performance through a timeline, heat maps, and aggregate visualizations co-designed with the therapist.The interactive visualizations enabled the therapist to strategically order and emphasize information to support patients' understanding of their health.We provide an analysis of the therapist's storytelling strategy in cognitive training that depended on patient self-awareness. The paper concludes with a discussion of tensions for designing storytelling in visualizations of health data for self-care systems targeted at stroke patients in clinical and home contexts.",

keywords = "self-care technology, patient self-awareness, trail making test, heat map visualization, time line visualization, rehabilitation, data interpretation, Storytelling system",

author = "Hougaard, {Bastian Ils{\o}} and Hendrik Knoche",

year = "2019",

month = may,

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doi = "10.1145/3329189.3329239",

language = "English",

pages = "435--443",

booktitle = "Proceedings of the 13th EAI International Conference on Pervasive Computing Technologies for Healthcare, PervasiveHealth 2019",

publisher = "Association for Computing Machinery (ACM)",

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note = "EAI International Conference on Pervasive Computing Technologies for Healthcare ; Conference date: 20-05-2019 Through 23-05-2019",

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Hougaard, BI & Knoche, H 2019, Telling the Story Right: How Therapists Aid Stroke Patients Interpret Personal Visualized Game Performance Data. i Proceedings of the 13th EAI International Conference on Pervasive Computing Technologies for Healthcare, PervasiveHealth 2019. Association for Computing Machinery (ACM), s. 435-443, EAI International Conference on Pervasive Computing Technologies for Healthcare, Trento, Italien, 20/05/2019. https://doi.org/10.1145/3329189.3329239

Telling the Story Right: How Therapists Aid Stroke Patients Interpret Personal Visualized Game Performance Data. / Hougaard, Bastian Ilsø ; Knoche, Hendrik.
Proceedings of the 13th EAI International Conference on Pervasive Computing Technologies for Healthcare, PervasiveHealth 2019. Association for Computing Machinery (ACM), 2019. s. 435-443.

Publikation: Bidrag til bog/antologi/rapport/konference proceeding › Konferenceartikel i proceeding › Forskning › peer review

TY - GEN

T1 - Telling the Story Right

T2 - EAI International Conference on Pervasive Computing Technologies for Healthcare

AU - Hougaard, Bastian Ilsø

AU - Knoche, Hendrik

N1 - Conference code: 13

PY - 2019/5/20

Y1 - 2019/5/20

N2 - Data visualizations of training performance can provide patients with insight and motivation to engage in future self-training sessions. Still, patients are in practice prone to misinterpret their data in practice due to lack of health numeracy.This paper contributes an ethnographic case study of how an occupational therapist employed storytelling to help 14 sub-acute stroke patients interpret visualizations of their training performance from a cognitive rehabilitation game.The Trail Making Test based game visualized performance through a timeline, heat maps, and aggregate visualizations co-designed with the therapist.The interactive visualizations enabled the therapist to strategically order and emphasize information to support patients' understanding of their health.We provide an analysis of the therapist's storytelling strategy in cognitive training that depended on patient self-awareness. The paper concludes with a discussion of tensions for designing storytelling in visualizations of health data for self-care systems targeted at stroke patients in clinical and home contexts.

AB - Data visualizations of training performance can provide patients with insight and motivation to engage in future self-training sessions. Still, patients are in practice prone to misinterpret their data in practice due to lack of health numeracy.This paper contributes an ethnographic case study of how an occupational therapist employed storytelling to help 14 sub-acute stroke patients interpret visualizations of their training performance from a cognitive rehabilitation game.The Trail Making Test based game visualized performance through a timeline, heat maps, and aggregate visualizations co-designed with the therapist.The interactive visualizations enabled the therapist to strategically order and emphasize information to support patients' understanding of their health.We provide an analysis of the therapist's storytelling strategy in cognitive training that depended on patient self-awareness. The paper concludes with a discussion of tensions for designing storytelling in visualizations of health data for self-care systems targeted at stroke patients in clinical and home contexts.

KW - self-care technology

KW - patient self-awareness

KW - trail making test

KW - heat map visualization

KW - time line visualization

KW - rehabilitation

KW - data interpretation

KW - Storytelling system

UR - http://www.scopus.com/inward/record.url?scp=85067870175&partnerID=8YFLogxK

U2 - 10.1145/3329189.3329239

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M3 - Article in proceeding

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BT - Proceedings of the 13th EAI International Conference on Pervasive Computing Technologies for Healthcare, PervasiveHealth 2019

PB - Association for Computing Machinery (ACM)

Y2 - 20 May 2019 through 23 May 2019

ER -

Telling the Story Right: How Therapists Aid Stroke Patients Interpret Personal Visualized Game Performance Data

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