The danish multiple sclerosis registry

Henrik Brønnum-Hansen; Nils Koch-Henriksen; Egon Stenager

doi:10.1177/1403494810390729

The danish multiple sclerosis registry

Henrik Brønnum-Hansen, Nils Koch-Henriksen, Egon Stenager

Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › peer review

40 Citationer (Scopus)

Abstract

Introduction: The Danish Multiple Sclerosis (MS) Registry was established in 1956. Content: The register comprises data on all Danes who had MS in 1949 or who have been diagnosed since. Data on new cases and updated information on persons with an MS diagnosis already notified are continuously collected and classified according to standardized diagnostic criteria. Validity and coverage: The completeness and validity is high (91% and 94%, respectively). CONCLUSION: In January 2005 the register included data on 20,652 persons with a valid MS diagnosis, of whom 9,377 were alive. The register is the only existing nationwide MS register and covers a period of more than 50 years.

Originalsprog	Engelsk
Bogserie	Scandinavian Journal of Public Health. Supplement
Vol/bind	39
Sider (fra-til)	62-4
Antal sider	3
ISSN	1403-4956
DOI	https://doi.org/10.1177/1403494810390729
Status	Udgivet - 1 jul. 2011
Udgivet eksternt	Ja

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abstract = "Introduction: The Danish Multiple Sclerosis (MS) Registry was established in 1956. Content: The register comprises data on all Danes who had MS in 1949 or who have been diagnosed since. Data on new cases and updated information on persons with an MS diagnosis already notified are continuously collected and classified according to standardized diagnostic criteria. Validity and coverage: The completeness and validity is high (91% and 94%, respectively). CONCLUSION: In January 2005 the register included data on 20,652 persons with a valid MS diagnosis, of whom 9,377 were alive. The register is the only existing nationwide MS register and covers a period of more than 50 years.",

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AU - Brønnum-Hansen, Henrik

AU - Koch-Henriksen, Nils

AU - Stenager, Egon

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N2 - Introduction: The Danish Multiple Sclerosis (MS) Registry was established in 1956. Content: The register comprises data on all Danes who had MS in 1949 or who have been diagnosed since. Data on new cases and updated information on persons with an MS diagnosis already notified are continuously collected and classified according to standardized diagnostic criteria. Validity and coverage: The completeness and validity is high (91% and 94%, respectively). CONCLUSION: In January 2005 the register included data on 20,652 persons with a valid MS diagnosis, of whom 9,377 were alive. The register is the only existing nationwide MS register and covers a period of more than 50 years.

AB - Introduction: The Danish Multiple Sclerosis (MS) Registry was established in 1956. Content: The register comprises data on all Danes who had MS in 1949 or who have been diagnosed since. Data on new cases and updated information on persons with an MS diagnosis already notified are continuously collected and classified according to standardized diagnostic criteria. Validity and coverage: The completeness and validity is high (91% and 94%, respectively). CONCLUSION: In January 2005 the register included data on 20,652 persons with a valid MS diagnosis, of whom 9,377 were alive. The register is the only existing nationwide MS register and covers a period of more than 50 years.

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DO - 10.1177/1403494810390729

M3 - Journal article

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JO - Scandinavian Journal of Public Health. Supplement

JF - Scandinavian Journal of Public Health. Supplement

ER -

The danish multiple sclerosis registry

Abstract

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