The 'Expiry Problem' of broad consent for biobank research - And why a meta consent model solves it

Thomas Ploug*, Søren Holm

*Kontaktforfatter

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Abstract

In this response to Neil Manson's latest intervention in our debate about the best consent model for biobank research we show, contra Manson that the 'expiry problem' that affects broad consent models because of changes over time in methods, purposes, types of data used and governance structures is a real and significant problem. We further show that our preferred implementation of meta consent as a national consent platform solves this problem and is not subject to the cost and burden objections that Manson raises.

OriginalsprogEngelsk
Artikelnummermedethics-2020-106117
TidsskriftJournal of Medical Ethics
Vol/bind46
Udgave nummer9
Sider (fra-til)629-631
Antal sider3
ISSN0306-6800
DOI
StatusUdgivet - 1 sep. 2020

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