TY - JOUR
T1 - The International Collaboration for Autism Registry Epidemiology (iCARE)
T2 - Multinational Registry-Based Investigations of Autism Risk Factors and Trends
AU - Schendel, Diana E.
AU - Bresnahan, Michaeline
AU - Carter, Kim W
AU - Francis, Richard W
AU - Gissler, Mika
AU - Grønborg, Therese Koops
AU - Gross, Raz
AU - Gunnes, Nina
AU - Hornig, Mady
AU - Hultman, Christina M
AU - Langridge, Amanda
AU - Lauritsen, Marlene B
AU - Leonard, Helen
AU - Parner, Erik Thorlund
AU - Reichenberg, Abraham
AU - Sandin, Sven
AU - Sourander, Andre
AU - Stoltenberg, Camilla
AU - Suominen, Auli
AU - Surén, Pål
AU - Susser, Ezra
PY - 2013/11
Y1 - 2013/11
N2 - The International Collaboration for Autism Registry Epidemiology (iCARE) is the first multinational research consortium (Australia, Denmark, Finland, Israel, Norway, Sweden, USA) to promote research in autism geographical and temporal heterogeneity, phenotype, family and life course patterns, and etiology. iCARE devised solutions to challenges in multinational collaboration concerning data access security, confidentiality and management. Data are obtained by integrating existing national or state-wide, population-based, individual-level data systems and undergo rigorous harmonization and quality control processes. Analyses are performed using database federation via a computational infrastructure with a secure, web-based, interface. iCARE provides a unique, unprecedented resource in autism research that will significantly enhance the ability to detect environmental and genetic contributions to the causes and life course of autism.
AB - The International Collaboration for Autism Registry Epidemiology (iCARE) is the first multinational research consortium (Australia, Denmark, Finland, Israel, Norway, Sweden, USA) to promote research in autism geographical and temporal heterogeneity, phenotype, family and life course patterns, and etiology. iCARE devised solutions to challenges in multinational collaboration concerning data access security, confidentiality and management. Data are obtained by integrating existing national or state-wide, population-based, individual-level data systems and undergo rigorous harmonization and quality control processes. Analyses are performed using database federation via a computational infrastructure with a secure, web-based, interface. iCARE provides a unique, unprecedented resource in autism research that will significantly enhance the ability to detect environmental and genetic contributions to the causes and life course of autism.
U2 - 10.1007/s10803-013-1815-x
DO - 10.1007/s10803-013-1815-x
M3 - Journal article
C2 - 23563868
SN - 0162-3257
VL - 43
SP - 2650
EP - 2663
JO - Journal of Autism and Developmental Disorders
JF - Journal of Autism and Developmental Disorders
IS - 11
ER -