Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system

Stephanie Githa Nadarajah; Peder Walz Pedersen; Bastian Ilsø Hougaard; Hendrik Knoche

doi:10.1145/3347444.3356237

Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system

Stephanie Githa Nadarajah, Peder Walz Pedersen, Bastian Ilsø Hougaard, Hendrik Knoche

Research output: Contribution to book/anthology/report/conference proceeding › Article in proceeding › Research › peer-review

4 Citations (Scopus)

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Abstract

An increasing number telehealth systems continuously collect selfreported data from patients. Objective and subjective collection of health data facilitates early detection and treatment of chronic conditions, but patient needs in these telehealth contexts are poorly understood. It is for example not clear how to support patients’ reflection on their daily self-reported data. Inadequate support can result in fragmented daily health monitoring and poor adherence. This paper contributes 1) a synthesis of the related but hitherto disjunct personal informatics literature on self-tracking and 2) an indepth field study on how six people suffering chronic obstructive pulmonary disease (COPD) used a telehealth system as part oftheir health self-tracking. Our analysis showed that a telehealth solution which relegated patients to mere data suppliers missed outon opportunities to address user needs. We extended Li’s 5-stage model to show where reflection manifested when interacting with the telehealth system.

Original language	English
Title of host publication	HealthMedia 2019 - Proceedings of the 4th International Workshop on Multimedia for Personal Health and Health Care, co-located with MM 2019
Number of pages	7
Publisher	Association for Computing Machinery
Publication date	15 Oct 2019
Edition	HealthMedia '19
Pages	2-8
ISBN (Electronic)	978-1-4503-6914-5
DOIs	https://doi.org/10.1145/3347444.3356237
Publication status	Published - 15 Oct 2019
Event	International Workshop on Multimedia for Personal Health & Health Care - Nice, France Duration: 21 Oct 2019 → 21 Oct 2019 Conference number: 4

Conference

Conference	International Workshop on Multimedia for Personal Health & Health Care
Number	4
Country/Territory	France
City	Nice
Period	21/10/2019 → 21/10/2019

Keywords

COPD
Patient-reported outcomes
Personal informatics
Quantified self
Reflection
Self-tracking
Tele-health
Telecare

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10.1145/3347444.3356237Licence: Other

AmICoughingMoreThanUsualAccepted author manuscript, 9.82 MBLicence: CC BY-NC 4.0

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Nadarajah, S. G., Pedersen, P. W., Hougaard, B. I., & Knoche, H. (2019). Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system. In HealthMedia 2019 - Proceedings of the 4th International Workshop on Multimedia for Personal Health and Health Care, co-located with MM 2019 (HealthMedia '19 ed., pp. 2-8). Association for Computing Machinery. https://doi.org/10.1145/3347444.3356237

Nadarajah, Stephanie Githa ; Pedersen, Peder Walz ; Hougaard, Bastian Ilsø et al. / Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system. HealthMedia 2019 - Proceedings of the 4th International Workshop on Multimedia for Personal Health and Health Care, co-located with MM 2019. HealthMedia '19. ed. Association for Computing Machinery, 2019. pp. 2-8

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abstract = "An increasing number telehealth systems continuously collect selfreported data from patients. Objective and subjective collection of health data facilitates early detection and treatment of chronic conditions, but patient needs in these telehealth contexts are poorly understood. It is for example not clear how to support patients{\textquoteright} reflection on their daily self-reported data. Inadequate support can result in fragmented daily health monitoring and poor adherence. This paper contributes 1) a synthesis of the related but hitherto disjunct personal informatics literature on self-tracking and 2) an indepth field study on how six people suffering chronic obstructive pulmonary disease (COPD) used a telehealth system as part oftheir health self-tracking. Our analysis showed that a telehealth solution which relegated patients to mere data suppliers missed outon opportunities to address user needs. We extended Li{\textquoteright}s 5-stage model to show where reflection manifested when interacting with the telehealth system.",

keywords = "COPD, Patient-reported outcomes, Personal informatics, Quantified self, Reflection, Self-tracking, Tele-health, Telecare",

author = "Nadarajah, {Stephanie Githa} and Pedersen, {Peder Walz} and Hougaard, {Bastian Ils{\o}} and Hendrik Knoche",

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Nadarajah, SG, Pedersen, PW, Hougaard, BI & Knoche, H 2019, Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system. in HealthMedia 2019 - Proceedings of the 4th International Workshop on Multimedia for Personal Health and Health Care, co-located with MM 2019. HealthMedia '19 edn, Association for Computing Machinery, pp. 2-8, International Workshop on Multimedia for Personal Health & Health Care, Nice, France, 21/10/2019. https://doi.org/10.1145/3347444.3356237

Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system. / Nadarajah, Stephanie Githa; Pedersen, Peder Walz; Hougaard, Bastian Ilsø et al.
HealthMedia 2019 - Proceedings of the 4th International Workshop on Multimedia for Personal Health and Health Care, co-located with MM 2019. HealthMedia '19. ed. Association for Computing Machinery, 2019. p. 2-8.

Research output: Contribution to book/anthology/report/conference proceeding › Article in proceeding › Research › peer-review

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ER -

Nadarajah SG, Pedersen PW, Hougaard BI , Knoche H. Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system. In HealthMedia 2019 - Proceedings of the 4th International Workshop on Multimedia for Personal Health and Health Care, co-located with MM 2019. HealthMedia '19 ed. Association for Computing Machinery. 2019. p. 2-8 doi: 10.1145/3347444.3356237

Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system

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