Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system

Stephanie Githa Nadarajah, Peder Walz Pedersen, Bastian Ilsø Hougaard, Hendrik Knoche

Research output: Contribution to book/anthology/report/conference proceedingArticle in proceedingResearchpeer-review

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Abstract

An increasing number telehealth systems continuously collect selfreported data from patients. Objective and subjective collection of health data facilitates early detection and treatment of chronic conditions, but patient needs in these telehealth contexts are poorly understood. It is for example not clear how to support patients’ reflection on their daily self-reported data. Inadequate support can result in fragmented daily health monitoring and poor adherence. This paper contributes 1) a synthesis of the related but hitherto disjunct personal informatics literature on self-tracking and 2) an indepth field study on how six people suffering chronic obstructive pulmonary disease (COPD) used a telehealth system as part oftheir health self-tracking. Our analysis showed that a telehealth solution which relegated patients to mere data suppliers missed outon opportunities to address user needs. We extended Li’s 5-stage model to show where reflection manifested when interacting with the telehealth system.
Original languageEnglish
Title of host publicationHealthMedia 2019 - Proceedings of the 4th International Workshop on Multimedia for Personal Health and Health Care, co-located with MM 2019
Number of pages7
PublisherAssociation for Computing Machinery
Publication date15 Oct 2019
EditionHealthMedia '19
Pages2-8
ISBN (Electronic)978-1-4503-6914-5
DOIs
Publication statusPublished - 15 Oct 2019
EventInternational Workshop on Multimedia for Personal Health & Health Care - Nice, France
Duration: 21 Oct 201921 Oct 2019
Conference number: 4

Conference

ConferenceInternational Workshop on Multimedia for Personal Health & Health Care
Number4
CountryFrance
CityNice
Period21/10/201921/10/2019

Fingerprint

Telemedicine
Chronic Obstructive Pulmonary Disease
Diagnostic Self Evaluation
Informatics
Health

Keywords

  • COPD
  • Patient-reported outcomes
  • Personal informatics
  • Quantified self
  • Reflection
  • Self-tracking
  • Tele-health
  • Telecare

Cite this

Nadarajah, S. G., Pedersen, P. W., Hougaard, B. I., & Knoche, H. (2019). Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system. In HealthMedia 2019 - Proceedings of the 4th International Workshop on Multimedia for Personal Health and Health Care, co-located with MM 2019 (HealthMedia '19 ed., pp. 2-8). Association for Computing Machinery. https://doi.org/10.1145/3347444.3356237
Nadarajah, Stephanie Githa ; Pedersen, Peder Walz ; Hougaard, Bastian Ilsø ; Knoche, Hendrik. / Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system. HealthMedia 2019 - Proceedings of the 4th International Workshop on Multimedia for Personal Health and Health Care, co-located with MM 2019. HealthMedia '19. ed. Association for Computing Machinery, 2019. pp. 2-8
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Nadarajah, SG, Pedersen, PW, Hougaard, BI & Knoche, H 2019, Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system. in HealthMedia 2019 - Proceedings of the 4th International Workshop on Multimedia for Personal Health and Health Care, co-located with MM 2019. HealthMedia '19 edn, Association for Computing Machinery, pp. 2-8, International Workshop on Multimedia for Personal Health & Health Care, Nice, France, 21/10/2019. https://doi.org/10.1145/3347444.3356237

Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system. / Nadarajah, Stephanie Githa; Pedersen, Peder Walz; Hougaard, Bastian Ilsø; Knoche, Hendrik.

HealthMedia 2019 - Proceedings of the 4th International Workshop on Multimedia for Personal Health and Health Care, co-located with MM 2019. HealthMedia '19. ed. Association for Computing Machinery, 2019. p. 2-8.

Research output: Contribution to book/anthology/report/conference proceedingArticle in proceedingResearchpeer-review

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Nadarajah SG, Pedersen PW, Hougaard BI, Knoche H. Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system. In HealthMedia 2019 - Proceedings of the 4th International Workshop on Multimedia for Personal Health and Health Care, co-located with MM 2019. HealthMedia '19 ed. Association for Computing Machinery. 2019. p. 2-8 https://doi.org/10.1145/3347444.3356237