Beyond Broken Bodies and Brains: A Mixed Methods Study of Mental Health and Life Transitions After Brain Injury

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Abstract

Purpose: Clients with an acquired brain injury (ABI) are at risk of mental health problems and it has been argued that transitions throughout the rehabilitation process are a challenge for rehabilitation practice; however, the link between transitions and psychosocial outcome has been under-researched. Therefore, this study aims to (1) investigate the status of clients with moderate or severe ABI two-year post-discharge on the following outcomes variables: Physical and cognitive function, depression, quality of life, civil and work status, (2) examine correlations between these outcomes and (3) explore through qualitative interviews the subjective experiences of individuals with ABI in order to increase our understanding of clients’ perspectives on this outcome and its relation to life transitions in a two-year period. Method: 37 individuals aged 18–66 with moderate or severe ABI were interviewed two years after discharge. At this time, they also completed standard measures of depression (MDI), quality of life (WHOQOL-bref) and functional independence (FIM™). Historical data of their FIM™ status at discharge were obtained for comparison. Results: We found psychological problems two years post-hospitalization, especially depression (35.1%) and decreased psychological QOL (61%). Analysis of interviews found six main factors perceived as important for psychosocial outcome: family relations, return to work, waiting lists, psychological support, fatigue and personal competences. Conclusions: Clients’ status two years post-hospitalization is often characterized by psychological problems. Based on clients’ accounts, we found a connection between psychosocial outcome and life transition experiences and developed a model of factors that are perceived as helping and hindering positive outcome.

Original languageEnglish
JournalBrain Impairment
Volume19
Issue number3
Pages (from-to)215-227
ISSN1443-9646
DOIs
Publication statusPublished - 2018

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Health Transition
Brain Injuries
Mental Health
Psychology
Brain
Depression
Hospitalization
Rehabilitation
Quality of Life
Interviews
Return to Work
Waiting Lists
Family Relations
Life Change Events
Mental Competency
Cognition
Fatigue

Keywords

  • Community re-entry/participation
  • measurement/psychometric
  • other
  • outcome
  • psychiatric/mental health/thought processes
  • rehabilitation psychology
  • stroke
  • traumatic brain injury

Cite this

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title = "Beyond Broken Bodies and Brains: A Mixed Methods Study of Mental Health and Life Transitions After Brain Injury",
abstract = "Purpose: Clients with an acquired brain injury (ABI) are at risk of mental health problems and it has been argued that transitions throughout the rehabilitation process are a challenge for rehabilitation practice; however, the link between transitions and psychosocial outcome has been under-researched. Therefore, this study aims to (1) investigate the status of clients with moderate or severe ABI two-year post-discharge on the following outcomes variables: Physical and cognitive function, depression, quality of life, civil and work status, (2) examine correlations between these outcomes and (3) explore through qualitative interviews the subjective experiences of individuals with ABI in order to increase our understanding of clients’ perspectives on this outcome and its relation to life transitions in a two-year period. Method: 37 individuals aged 18–66 with moderate or severe ABI were interviewed two years after discharge. At this time, they also completed standard measures of depression (MDI), quality of life (WHOQOL-bref) and functional independence (FIM™). Historical data of their FIM™ status at discharge were obtained for comparison. Results: We found psychological problems two years post-hospitalization, especially depression (35.1{\%}) and decreased psychological QOL (61{\%}). Analysis of interviews found six main factors perceived as important for psychosocial outcome: family relations, return to work, waiting lists, psychological support, fatigue and personal competences. Conclusions: Clients’ status two years post-hospitalization is often characterized by psychological problems. Based on clients’ accounts, we found a connection between psychosocial outcome and life transition experiences and developed a model of factors that are perceived as helping and hindering positive outcome.",
keywords = "Community re-entry/participation, measurement/psychometric, other, outcome, psychiatric/mental health/thought processes, rehabilitation psychology, stroke, traumatic brain injury",
author = "Chalotte Glintborg and Thomsen, {Ane S.} and Hansen, {Tia G.B.}",
year = "2018",
doi = "10.1017/BrImp.2017.14",
language = "English",
volume = "19",
pages = "215--227",
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}

Beyond Broken Bodies and Brains : A Mixed Methods Study of Mental Health and Life Transitions After Brain Injury. / Glintborg, Chalotte; Thomsen, Ane S.; Hansen, Tia G.B.

In: Brain Impairment, Vol. 19, No. 3, 2018, p. 215-227.

Research output: Contribution to journalJournal articleResearchpeer-review

TY - JOUR

T1 - Beyond Broken Bodies and Brains

T2 - A Mixed Methods Study of Mental Health and Life Transitions After Brain Injury

AU - Glintborg, Chalotte

AU - Thomsen, Ane S.

AU - Hansen, Tia G.B.

PY - 2018

Y1 - 2018

N2 - Purpose: Clients with an acquired brain injury (ABI) are at risk of mental health problems and it has been argued that transitions throughout the rehabilitation process are a challenge for rehabilitation practice; however, the link between transitions and psychosocial outcome has been under-researched. Therefore, this study aims to (1) investigate the status of clients with moderate or severe ABI two-year post-discharge on the following outcomes variables: Physical and cognitive function, depression, quality of life, civil and work status, (2) examine correlations between these outcomes and (3) explore through qualitative interviews the subjective experiences of individuals with ABI in order to increase our understanding of clients’ perspectives on this outcome and its relation to life transitions in a two-year period. Method: 37 individuals aged 18–66 with moderate or severe ABI were interviewed two years after discharge. At this time, they also completed standard measures of depression (MDI), quality of life (WHOQOL-bref) and functional independence (FIM™). Historical data of their FIM™ status at discharge were obtained for comparison. Results: We found psychological problems two years post-hospitalization, especially depression (35.1%) and decreased psychological QOL (61%). Analysis of interviews found six main factors perceived as important for psychosocial outcome: family relations, return to work, waiting lists, psychological support, fatigue and personal competences. Conclusions: Clients’ status two years post-hospitalization is often characterized by psychological problems. Based on clients’ accounts, we found a connection between psychosocial outcome and life transition experiences and developed a model of factors that are perceived as helping and hindering positive outcome.

AB - Purpose: Clients with an acquired brain injury (ABI) are at risk of mental health problems and it has been argued that transitions throughout the rehabilitation process are a challenge for rehabilitation practice; however, the link between transitions and psychosocial outcome has been under-researched. Therefore, this study aims to (1) investigate the status of clients with moderate or severe ABI two-year post-discharge on the following outcomes variables: Physical and cognitive function, depression, quality of life, civil and work status, (2) examine correlations between these outcomes and (3) explore through qualitative interviews the subjective experiences of individuals with ABI in order to increase our understanding of clients’ perspectives on this outcome and its relation to life transitions in a two-year period. Method: 37 individuals aged 18–66 with moderate or severe ABI were interviewed two years after discharge. At this time, they also completed standard measures of depression (MDI), quality of life (WHOQOL-bref) and functional independence (FIM™). Historical data of their FIM™ status at discharge were obtained for comparison. Results: We found psychological problems two years post-hospitalization, especially depression (35.1%) and decreased psychological QOL (61%). Analysis of interviews found six main factors perceived as important for psychosocial outcome: family relations, return to work, waiting lists, psychological support, fatigue and personal competences. Conclusions: Clients’ status two years post-hospitalization is often characterized by psychological problems. Based on clients’ accounts, we found a connection between psychosocial outcome and life transition experiences and developed a model of factors that are perceived as helping and hindering positive outcome.

KW - Community re-entry/participation

KW - measurement/psychometric

KW - other

KW - outcome

KW - psychiatric/mental health/thought processes

KW - rehabilitation psychology

KW - stroke

KW - traumatic brain injury

U2 - 10.1017/BrImp.2017.14

DO - 10.1017/BrImp.2017.14

M3 - Journal article

VL - 19

SP - 215

EP - 227

JO - Brain Impairment

JF - Brain Impairment

SN - 1443-9646

IS - 3

ER -