Diabetes Attitudes, Wishes and Needs second study (DAWN2™): cross-national benchmarking of diabetes-related psychosocial outcomes for people with diabetes

A Nicolucci; K Kovacs Burns; R I G Holt; M Comaschi; N Hermanns; H Ishii; A Kokoszka; F Pouwer; S E Skovlund; H Stuckey; I Tarkun; M Vallis; J Wens; M Peyrot; DAWN2 Study Group

doi:10.1111/dme.12245

Diabetes Attitudes, Wishes and Needs second study (DAWN2™): cross-national benchmarking of diabetes-related psychosocial outcomes for people with diabetes

A Nicolucci, K Kovacs Burns, R I G Holt, M Comaschi, N Hermanns, H Ishii, A Kokoszka, F Pouwer, S E Skovlund, H Stuckey, I Tarkun, M Vallis, J Wens, M Peyrot, DAWN2 Study Group

Research output: Contribution to journal › Journal article › Research › peer-review

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Abstract

AIMS: The second Diabetes Attitudes, Wishes and Needs (DAWN2) study aimed to assess psychosocial outcomes in people with diabetes across countries for benchmarking.

METHODS: Surveys included new and adapted questions from validated questionnaires that assess health-related quality of life, self-management, attitudes/beliefs, social support and priorities for improving diabetes care. Questionnaires were conducted online, by telephone or in person.

RESULTS: Participants were 8596 adults with diabetes across 17 countries. There were significant between-country differences for all benchmarking indicators; no one country's outcomes were consistently better or worse than others. The proportion with likely depression [WHO-5 Well-Being Index (WHO-5) score ≤ 28] was 13.8% (country range 6.5-24.1%). Diabetes-related distress [Problem Areas in Diabetes Scale 5 (PAID-5) score ≥ 40] was reported by 44.6% of participants (17.2-67.6%). Overall quality of life was rated 'poor' or 'very poor' by 12.2% of participants (7.6-26.1%). Diabetes had a negative impact on all aspects investigated, ranging from 20.5% on relationship with family/friends to 62.2% on physical health. Approximately 40% of participants (18.6-64.9%) reported that their medication interfered with their ability to live a normal life. The availability of person-centred chronic illness care and support for active involvement was rated as low. Following self-care advice for medication and diet was most common, and least common for glucose monitoring and foot examination, with marked country variation. Only 48.8% of respondents had participated in diabetes educational programmes/activities to help manage their diabetes.

CONCLUSIONS: Cross-national benchmarking using psychometrically validated indicators can help identify areas for improvement and best practices to drive changes that improve outcomes for people with diabetes.

Original language	English
Journal	Diabetic Medicine Online
Volume	30
Issue number	7
Pages (from-to)	767-77
Number of pages	11
ISSN	1464-5491
DOIs	https://doi.org/10.1111/dme.12245
Publication status	Published - Jul 2013
Externally published	Yes

Keywords

Adult
Cost of Illness
Depression
Diabetes Mellitus
Diabetes Mellitus, Type 1
Diabetes Mellitus, Type 2
Diet
Exercise
Female
Health Knowledge, Attitudes, Practice
Health Priorities
Health Status
Humans
Hypoglycemic Agents
International Cooperation
Male
Middle Aged
Patient Education as Topic
Quality of Life
Self Care
Social Support
Surveys and Questionnaires
Journal Article
Research Support, Non-U.S. Gov't

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Nicolucci, A., Kovacs Burns, K., Holt, R. I. G., Comaschi, M., Hermanns, N., Ishii, H., Kokoszka, A., Pouwer, F., Skovlund, S. E., Stuckey, H., Tarkun, I., Vallis, M., Wens, J., Peyrot, M., & DAWN2 Study Group (2013). Diabetes Attitudes, Wishes and Needs second study (DAWN2™): cross-national benchmarking of diabetes-related psychosocial outcomes for people with diabetes. Diabetic Medicine Online, 30(7), 767-77. https://doi.org/10.1111/dme.12245

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title = "Diabetes Attitudes, Wishes and Needs second study (DAWN2{\texttrademark}): cross-national benchmarking of diabetes-related psychosocial outcomes for people with diabetes",

abstract = "AIMS: The second Diabetes Attitudes, Wishes and Needs (DAWN2) study aimed to assess psychosocial outcomes in people with diabetes across countries for benchmarking.METHODS: Surveys included new and adapted questions from validated questionnaires that assess health-related quality of life, self-management, attitudes/beliefs, social support and priorities for improving diabetes care. Questionnaires were conducted online, by telephone or in person.RESULTS: Participants were 8596 adults with diabetes across 17 countries. There were significant between-country differences for all benchmarking indicators; no one country's outcomes were consistently better or worse than others. The proportion with likely depression [WHO-5 Well-Being Index (WHO-5) score ≤ 28] was 13.8% (country range 6.5-24.1%). Diabetes-related distress [Problem Areas in Diabetes Scale 5 (PAID-5) score ≥ 40] was reported by 44.6% of participants (17.2-67.6%). Overall quality of life was rated 'poor' or 'very poor' by 12.2% of participants (7.6-26.1%). Diabetes had a negative impact on all aspects investigated, ranging from 20.5% on relationship with family/friends to 62.2% on physical health. Approximately 40% of participants (18.6-64.9%) reported that their medication interfered with their ability to live a normal life. The availability of person-centred chronic illness care and support for active involvement was rated as low. Following self-care advice for medication and diet was most common, and least common for glucose monitoring and foot examination, with marked country variation. Only 48.8% of respondents had participated in diabetes educational programmes/activities to help manage their diabetes.CONCLUSIONS: Cross-national benchmarking using psychometrically validated indicators can help identify areas for improvement and best practices to drive changes that improve outcomes for people with diabetes.",

keywords = "Adult, Cost of Illness, Depression, Diabetes Mellitus, Diabetes Mellitus, Type 1, Diabetes Mellitus, Type 2, Diet, Exercise, Female, Health Knowledge, Attitudes, Practice, Health Priorities, Health Status, Humans, Hypoglycemic Agents, International Cooperation, Male, Middle Aged, Patient Education as Topic, Quality of Life, Self Care, Social Support, Surveys and Questionnaires, Journal Article, Research Support, Non-U.S. Gov't",

author = "A Nicolucci and {Kovacs Burns}, K and Holt, {R I G} and M Comaschi and N Hermanns and H Ishii and A Kokoszka and F Pouwer and Skovlund, {S E} and H Stuckey and I Tarkun and M Vallis and J Wens and M Peyrot and {DAWN2 Study Group}",

note = "{\textcopyright} 2013 The Authors. Diabetic Medicine {\textcopyright} 2013 Diabetes UK.",

year = "2013",

month = jul,

doi = "10.1111/dme.12245",

language = "English",

volume = "30",

pages = "767--77",

journal = "Diabetic Medicine Online",

issn = "1464-5491",

publisher = "Wiley-Blackwell",

number = "7",

}

Nicolucci, A, Kovacs Burns, K, Holt, RIG, Comaschi, M, Hermanns, N, Ishii, H, Kokoszka, A, Pouwer, F, Skovlund, SE, Stuckey, H, Tarkun, I, Vallis, M, Wens, J, Peyrot, M & DAWN2 Study Group 2013, 'Diabetes Attitudes, Wishes and Needs second study (DAWN2™): cross-national benchmarking of diabetes-related psychosocial outcomes for people with diabetes', Diabetic Medicine Online, vol. 30, no. 7, pp. 767-77. https://doi.org/10.1111/dme.12245

TY - JOUR

T1 - Diabetes Attitudes, Wishes and Needs second study (DAWN2™)

T2 - cross-national benchmarking of diabetes-related psychosocial outcomes for people with diabetes

AU - Nicolucci, A

AU - Kovacs Burns, K

AU - Holt, R I G

AU - Comaschi, M

AU - Hermanns, N

AU - Ishii, H

AU - Kokoszka, A

AU - Pouwer, F

AU - Skovlund, S E

AU - Stuckey, H

AU - Tarkun, I

AU - Vallis, M

AU - Wens, J

AU - Peyrot, M

AU - DAWN2 Study Group

PY - 2013/7

Y1 - 2013/7

N2 - AIMS: The second Diabetes Attitudes, Wishes and Needs (DAWN2) study aimed to assess psychosocial outcomes in people with diabetes across countries for benchmarking.METHODS: Surveys included new and adapted questions from validated questionnaires that assess health-related quality of life, self-management, attitudes/beliefs, social support and priorities for improving diabetes care. Questionnaires were conducted online, by telephone or in person.RESULTS: Participants were 8596 adults with diabetes across 17 countries. There were significant between-country differences for all benchmarking indicators; no one country's outcomes were consistently better or worse than others. The proportion with likely depression [WHO-5 Well-Being Index (WHO-5) score ≤ 28] was 13.8% (country range 6.5-24.1%). Diabetes-related distress [Problem Areas in Diabetes Scale 5 (PAID-5) score ≥ 40] was reported by 44.6% of participants (17.2-67.6%). Overall quality of life was rated 'poor' or 'very poor' by 12.2% of participants (7.6-26.1%). Diabetes had a negative impact on all aspects investigated, ranging from 20.5% on relationship with family/friends to 62.2% on physical health. Approximately 40% of participants (18.6-64.9%) reported that their medication interfered with their ability to live a normal life. The availability of person-centred chronic illness care and support for active involvement was rated as low. Following self-care advice for medication and diet was most common, and least common for glucose monitoring and foot examination, with marked country variation. Only 48.8% of respondents had participated in diabetes educational programmes/activities to help manage their diabetes.CONCLUSIONS: Cross-national benchmarking using psychometrically validated indicators can help identify areas for improvement and best practices to drive changes that improve outcomes for people with diabetes.

AB - AIMS: The second Diabetes Attitudes, Wishes and Needs (DAWN2) study aimed to assess psychosocial outcomes in people with diabetes across countries for benchmarking.METHODS: Surveys included new and adapted questions from validated questionnaires that assess health-related quality of life, self-management, attitudes/beliefs, social support and priorities for improving diabetes care. Questionnaires were conducted online, by telephone or in person.RESULTS: Participants were 8596 adults with diabetes across 17 countries. There were significant between-country differences for all benchmarking indicators; no one country's outcomes were consistently better or worse than others. The proportion with likely depression [WHO-5 Well-Being Index (WHO-5) score ≤ 28] was 13.8% (country range 6.5-24.1%). Diabetes-related distress [Problem Areas in Diabetes Scale 5 (PAID-5) score ≥ 40] was reported by 44.6% of participants (17.2-67.6%). Overall quality of life was rated 'poor' or 'very poor' by 12.2% of participants (7.6-26.1%). Diabetes had a negative impact on all aspects investigated, ranging from 20.5% on relationship with family/friends to 62.2% on physical health. Approximately 40% of participants (18.6-64.9%) reported that their medication interfered with their ability to live a normal life. The availability of person-centred chronic illness care and support for active involvement was rated as low. Following self-care advice for medication and diet was most common, and least common for glucose monitoring and foot examination, with marked country variation. Only 48.8% of respondents had participated in diabetes educational programmes/activities to help manage their diabetes.CONCLUSIONS: Cross-national benchmarking using psychometrically validated indicators can help identify areas for improvement and best practices to drive changes that improve outcomes for people with diabetes.

KW - Adult

KW - Cost of Illness

KW - Depression

KW - Diabetes Mellitus

KW - Diabetes Mellitus, Type 1

KW - Diabetes Mellitus, Type 2

KW - Diet

KW - Exercise

KW - Female

KW - Health Knowledge, Attitudes, Practice

KW - Health Priorities

KW - Health Status

KW - Humans

KW - Hypoglycemic Agents

KW - International Cooperation

KW - Male

KW - Middle Aged

KW - Patient Education as Topic

KW - Quality of Life

KW - Self Care

KW - Social Support

KW - Surveys and Questionnaires

KW - Journal Article

KW - Research Support, Non-U.S. Gov't

U2 - 10.1111/dme.12245

DO - 10.1111/dme.12245

M3 - Journal article

C2 - 23711019

SN - 1464-5491

VL - 30

SP - 767

EP - 777

JO - Diabetic Medicine Online

JF - Diabetic Medicine Online

IS - 7

ER -

Diabetes Attitudes, Wishes and Needs second study (DAWN2™): cross-national benchmarking of diabetes-related psychosocial outcomes for people with diabetes

Abstract

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