TY - GEN
T1 - Digital support for self-management in children with diabetes
T2 - 30th Medical Informatics Europe Conference, MIE 2020
AU - Andersen, Nicole Safavi
AU - Haugaard, Louise Hedrich
AU - Pedersen, Sissel Bøgh
AU - Pedersen, Mikkel Strange
AU - Bygholm, Ann
PY - 2020/6/16
Y1 - 2020/6/16
N2 - In this paper we present a study on the needs and requirements in a digital tool to support self-management in children and adolescents (0-18 years) with type 1 diabetes. The study was formally initiated by the Steno Diabetes Center North Jutland (SDCN), which wanted to develop a virtual universe that could support children and young people in coping with their disease. Through this study we interviewed the project manager from SDCN and the head of the family group in North Jutland. Furthermore, we observed a workshop involving health care professionals and learning specialists who were working with ideas for the virtual universe. We conducted two focus group interviews, one for children with type 1 diabetes and one for parents with diabetic children. The analysis of the data revealed very different ideas about what digital support is important for the self-management of this target group. Health care professionals focused on developing various learning materials using virtual reality or augmented reality, while the parents desired security and control and requested materials that could inform and educate people in their locale, such as school teachers, parents of their children's friends, etc. The children emphasized the importance of not being singled out and requested simple tools that could be used from their smartphones. They especially asked for tools that could help them manage their diabetes by themselves in a fast and effective way, e.g., making it easier to count carbohydrates and calculate their insulin intake. Based on the analysis, we developed suggestions for a design. The main lesson learned from this study was the importance of focusing on the actual users and their everyday lives in developing new tools, and not on technological possibilities.
AB - In this paper we present a study on the needs and requirements in a digital tool to support self-management in children and adolescents (0-18 years) with type 1 diabetes. The study was formally initiated by the Steno Diabetes Center North Jutland (SDCN), which wanted to develop a virtual universe that could support children and young people in coping with their disease. Through this study we interviewed the project manager from SDCN and the head of the family group in North Jutland. Furthermore, we observed a workshop involving health care professionals and learning specialists who were working with ideas for the virtual universe. We conducted two focus group interviews, one for children with type 1 diabetes and one for parents with diabetic children. The analysis of the data revealed very different ideas about what digital support is important for the self-management of this target group. Health care professionals focused on developing various learning materials using virtual reality or augmented reality, while the parents desired security and control and requested materials that could inform and educate people in their locale, such as school teachers, parents of their children's friends, etc. The children emphasized the importance of not being singled out and requested simple tools that could be used from their smartphones. They especially asked for tools that could help them manage their diabetes by themselves in a fast and effective way, e.g., making it easier to count carbohydrates and calculate their insulin intake. Based on the analysis, we developed suggestions for a design. The main lesson learned from this study was the importance of focusing on the actual users and their everyday lives in developing new tools, and not on technological possibilities.
KW - App design
KW - Diabetes
KW - User research
U2 - 10.3233/SHTI200302
DO - 10.3233/SHTI200302
M3 - Article in proceeding
C2 - 32570522
AN - SCOPUS:85086886473
SN - 978-1-64368-082-8
T3 - Studies in Health Technology and Informatics
SP - 951
EP - 955
BT - Digital Personalized Health and Medicine - Proceedings of MIE 2020
A2 - Pape-Haugaard, Louise B.
A2 - Lovis, Christian
A2 - Madsen, Inge Cort
A2 - Weber, Patrick
A2 - Nielsen, Per Hostrup
A2 - Scott, Philip
PB - IOS Press
Y2 - 28 April 2020 through 1 May 2020
ER -