Experts Perception of Patient-Reported Outcomes (PROs) in a Danish Context

Jeppe Eriksen; Ann Kathrin Meilandt Bygholm; Pernille Scholdan Bertelsen

Experts Perception of Patient-Reported Outcomes (PROs) in a Danish Context

Jeppe Eriksen, Ann Kathrin Meilandt Bygholm, Pernille Scholdan Bertelsen

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Abstract

This paper elucidates the understanding of Patient-Reported Outcomes (PROs) among experts in a Danish context. PROs are currently implemented on a regional and national level in Denmark (DK); even though, their purpose and functionality seem unclear. Methodologically the study is based on seven semi-structured interviews with core PRO-experts. PRO was identified as: data on an individual/population level; an active/passive functionality; contextual dependent; quality improvements; Value-Based Healthcare; patient-centred care; part of clinical practice; technology and as an economic tool. An analysis of the discrepancies among PRO-experts reveals that their perceptions are associated with their experiences and/or organizational positions.

Original language	English
Title of host publication	Proceedings of the 17th Scandinavian Conference on Health Informatics : 12 -13 Nov 2019, Oslo Norway
Editors	Conceição Granja, Terje Solvol
Number of pages	6
Publisher	Linköping University Electronic Press
Publication date	2019
Pages	160-165
Article number	027
ISBN (Print)	978-91-7929-957-6
Publication status	Published - 2019
Event	Scandinavian Conference on Health Informatics - Oslo, Norway Duration: 12 Nov 2019 → 12 Nov 2019 Conference number: 17 https://ehealthresearch.no/shi2019

Conference

Conference	Scandinavian Conference on Health Informatics
Number	17
Country/Territory	Norway
City	Oslo
Period	12/11/2019 → 12/11/2019
Internet address	https://ehealthresearch.no/shi2019

Series	Linköping Electronic Conference Proceedings
Number	161
ISSN	1650-3686

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http://www.ep.liu.se/ecp/article.asp?issue=161&article=027&volume=Licence: CC BY-NC 3.0

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Eriksen, J., Bygholm, A. K. M., & Bertelsen, P. S. (2019). Experts Perception of Patient-Reported Outcomes (PROs) in a Danish Context. In C. Granja, & T. Solvol (Eds.), Proceedings of the 17th Scandinavian Conference on Health Informatics: 12 -13 Nov 2019, Oslo Norway (pp. 160-165). Article 027 Linköping University Electronic Press. http://www.ep.liu.se/ecp/article.asp?issue=161&article=027&volume=

Eriksen, Jeppe ; Bygholm, Ann Kathrin Meilandt ; Bertelsen, Pernille Scholdan. / Experts Perception of Patient-Reported Outcomes (PROs) in a Danish Context. Proceedings of the 17th Scandinavian Conference on Health Informatics: 12 -13 Nov 2019, Oslo Norway. editor / Conceição Granja ; Terje Solvol. Linköping University Electronic Press, 2019. pp. 160-165 (Linköping Electronic Conference Proceedings; No. 161).

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title = "Experts Perception of Patient-Reported Outcomes (PROs) in a Danish Context",

abstract = "This paper elucidates the understanding of Patient-Reported Outcomes (PROs) among experts in a Danish context. PROs are currently implemented on a regional and national level in Denmark (DK); even though, their purpose and functionality seem unclear. Methodologically the study is based on seven semi-structured interviews with core PRO-experts. PRO was identified as: data on an individual/population level; an active/passive functionality; contextual dependent; quality improvements; Value-Based Healthcare; patient-centred care; part of clinical practice; technology and as an economic tool. An analysis of the discrepancies among PRO-experts reveals that their perceptions are associated with their experiences and/or organizational positions. ",

keywords = "patient-reported outcome, PRO, PROM, HRQoL, PRO-epxerts",

author = "Jeppe Eriksen and Bygholm, {Ann Kathrin Meilandt} and Bertelsen, {Pernille Scholdan}",

year = "2019",

language = "English",

isbn = "978-91-7929-957-6",

series = "Link{\"o}ping Electronic Conference Proceedings",

number = "161",

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editor = "Granja, {Concei{\c c}{\~a}o } and Solvol, {Terje }",

booktitle = "Proceedings of the 17th Scandinavian Conference on Health Informatics",

publisher = "Link{\"o}ping University Electronic Press",

note = "Scandinavian Conference on Health Informatics, SHI ; Conference date: 12-11-2019 Through 12-11-2019",

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Eriksen, J , Bygholm, AKM & Bertelsen, PS 2019, Experts Perception of Patient-Reported Outcomes (PROs) in a Danish Context. in C Granja & T Solvol (eds), Proceedings of the 17th Scandinavian Conference on Health Informatics: 12 -13 Nov 2019, Oslo Norway., 027, Linköping University Electronic Press, Linköping Electronic Conference Proceedings, no. 161, pp. 160-165, Scandinavian Conference on Health Informatics, Oslo, Norway, 12/11/2019. <http://www.ep.liu.se/ecp/article.asp?issue=161&article=027&volume=>

Experts Perception of Patient-Reported Outcomes (PROs) in a Danish Context. / Eriksen, Jeppe ; Bygholm, Ann Kathrin Meilandt ; Bertelsen, Pernille Scholdan.
Proceedings of the 17th Scandinavian Conference on Health Informatics: 12 -13 Nov 2019, Oslo Norway. ed. / Conceição Granja; Terje Solvol. Linköping University Electronic Press, 2019. p. 160-165 027 (Linköping Electronic Conference Proceedings; No. 161).

Research output: Contribution to book/anthology/report/conference proceeding › Article in proceeding › Research › peer-review

TY - GEN

T1 - Experts Perception of Patient-Reported Outcomes (PROs) in a Danish Context

AU - Eriksen, Jeppe

AU - Bygholm, Ann Kathrin Meilandt

AU - Bertelsen, Pernille Scholdan

N1 - Conference code: 17

PY - 2019

Y1 - 2019

N2 - This paper elucidates the understanding of Patient-Reported Outcomes (PROs) among experts in a Danish context. PROs are currently implemented on a regional and national level in Denmark (DK); even though, their purpose and functionality seem unclear. Methodologically the study is based on seven semi-structured interviews with core PRO-experts. PRO was identified as: data on an individual/population level; an active/passive functionality; contextual dependent; quality improvements; Value-Based Healthcare; patient-centred care; part of clinical practice; technology and as an economic tool. An analysis of the discrepancies among PRO-experts reveals that their perceptions are associated with their experiences and/or organizational positions.

AB - This paper elucidates the understanding of Patient-Reported Outcomes (PROs) among experts in a Danish context. PROs are currently implemented on a regional and national level in Denmark (DK); even though, their purpose and functionality seem unclear. Methodologically the study is based on seven semi-structured interviews with core PRO-experts. PRO was identified as: data on an individual/population level; an active/passive functionality; contextual dependent; quality improvements; Value-Based Healthcare; patient-centred care; part of clinical practice; technology and as an economic tool. An analysis of the discrepancies among PRO-experts reveals that their perceptions are associated with their experiences and/or organizational positions.

KW - patient-reported outcome

KW - PRO

KW - PROM

KW - HRQoL

KW - PRO-epxerts

M3 - Article in proceeding

SN - 978-91-7929-957-6

T3 - Linköping Electronic Conference Proceedings

SP - 160

EP - 165

BT - Proceedings of the 17th Scandinavian Conference on Health Informatics

A2 - Granja, Conceição

A2 - Solvol, Terje

PB - Linköping University Electronic Press

T2 - Scandinavian Conference on Health Informatics

Y2 - 12 November 2019 through 12 November 2019

ER -

Experts Perception of Patient-Reported Outcomes (PROs) in a Danish Context

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