”How do the patients and their close relatives experience The Coordinated Investigation Model of Dementia in the North Denmark Region?”

Aase Marie Ottesen og praktiserende læge Hanne Hulgaard

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Abstract

How do the patients and their close relatives experience The Coordinated Investigation Model of Dementia in the North Denmark Region?

The aim of the project was to investigate how the patients and their close relatives experienced the investigation and the subsequent social medicine intervention, and to give recommendations based on the results. The project is based on qualitative interviews with 11 families.

Background
The Coordinated Investigation Model of Dementia implies that the primary investigation is carried out in the primary sector by a general practitioner in cooperation with a local dementia nurse in accordance to a specified procedure. Further investigation may hereafter be carried out by specialists in the secondary sector. Especially after The Coordinated Investigation Model was evaluated in 2005 and found useful from a professional point of view, we found it relevant to investigate the experiences by the patients and their close relatives.

Results
The project shows that the patients and their close relatives don´t relate to the model – but rather to the results of the investigation, responsiveness and comfort. The investigation in the secondary sector seems very important to the patients and their relatives, who generally expressed that important decisions and information were handled by the secondary sector. A follow-up interview in the primary sector after investigation, which is mandatory according to the model, was practiced to a very limited extent. The role of the local dementia nurse as a coordinator was widely recommended by the patients and their close relatives, since many have experienced an accessible support and a relevant help.
Recommendations
The primary sector´s role in investigation and follow-up should be strengthened with the aim of executing the model with lowest effective cost. A formal agreement regarding follow-up should be implemented. The relatives should be more involved during both investigation period and in the socio-medical follow-up.
Original languageEnglish
Publication date2012
Publication statusPublished - 2012
Eventthe 21st Nordic Congress of Gerontology -
Duration: 11 Jun 201213 Jun 2012

Conference

Conferencethe 21st Nordic Congress of Gerontology
Period11/06/201213/06/2012

Cite this

Aase Marie Ottesen og praktiserende læge Hanne Hulgaard (2012). ”How do the patients and their close relatives experience The Coordinated Investigation Model of Dementia in the North Denmark Region?”. Poster presented at the 21st Nordic Congress of Gerontology, .