Illness representations among parents of children and adults with serious mental disorders: A systematic review and theoretical model

Ilanit Hasson-Ohayon, Gil Goldzweig, Adi Lavi-Rotenberg, David Roe, Gerdina Hendrika Maria Pijnenborg

Research output: Contribution to journalReview articleResearchpeer-review

Abstract

OBJECTIVE: Cognitive representations of an illness have an important impact on psychological outcomes. The current systematic review explored 1) the characteristics of illness representations held by parents of children and adults with serious mental illness (SMI), and 2) the associations of these representations with both parents' and patients' psychological outcomes.

METHOD: PSYINFO and PUBMED were screened for eligible studies published between January 2000 and August 2018. Selection was based on PRISMA guidelines. Reference lists of these papers were checked for additional references. Two independent coders extracted all relevant data.

RESULTS: The search resulted in 31 relevant studies, which were divided, by type of methodology, into three sections: quantitative, qualitative, and mixed quantitative-qualitative. In each section, findings were divided in accordance with the two research questions.

CONCLUSION: Parents struggle to make meaning of their child's illness, often holding stigmatizing ideas about the illness and blaming themselves for its existence. More longitudinal studies that include both of the child's parents, as well as interventional studies, are needed to expand our knowledge of ways to help parents construct more beneficial representations of their children's illnesses.

Original languageEnglish
JournalEuropean Psychiatry
Volume58
Pages (from-to)27-37
Number of pages11
ISSN0924-9338
DOIs
Publication statusPublished - May 2019

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Mental Disorders
Theoretical Models
Parents
Psychology
Longitudinal Studies
Guidelines
Research

Keywords

  • Illness perception
  • Insight
  • Parents
  • Self-stigma
  • Models, Theoretical
  • Severity of Illness Index
  • Parents/psychology
  • Humans
  • Male
  • Caregivers/psychology
  • Parenting/psychology
  • Mental Disorders/epidemiology
  • Adult
  • Female
  • Parent-Child Relations
  • Child
  • Adaptation, Psychological

Cite this

Hasson-Ohayon, Ilanit ; Goldzweig, Gil ; Lavi-Rotenberg, Adi ; Roe, David ; Pijnenborg, Gerdina Hendrika Maria. / Illness representations among parents of children and adults with serious mental disorders : A systematic review and theoretical model. In: European Psychiatry. 2019 ; Vol. 58. pp. 27-37.
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abstract = "OBJECTIVE: Cognitive representations of an illness have an important impact on psychological outcomes. The current systematic review explored 1) the characteristics of illness representations held by parents of children and adults with serious mental illness (SMI), and 2) the associations of these representations with both parents' and patients' psychological outcomes.METHOD: PSYINFO and PUBMED were screened for eligible studies published between January 2000 and August 2018. Selection was based on PRISMA guidelines. Reference lists of these papers were checked for additional references. Two independent coders extracted all relevant data.RESULTS: The search resulted in 31 relevant studies, which were divided, by type of methodology, into three sections: quantitative, qualitative, and mixed quantitative-qualitative. In each section, findings were divided in accordance with the two research questions.CONCLUSION: Parents struggle to make meaning of their child's illness, often holding stigmatizing ideas about the illness and blaming themselves for its existence. More longitudinal studies that include both of the child's parents, as well as interventional studies, are needed to expand our knowledge of ways to help parents construct more beneficial representations of their children's illnesses.",
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Illness representations among parents of children and adults with serious mental disorders : A systematic review and theoretical model. / Hasson-Ohayon, Ilanit; Goldzweig, Gil; Lavi-Rotenberg, Adi; Roe, David; Pijnenborg, Gerdina Hendrika Maria.

In: European Psychiatry, Vol. 58, 05.2019, p. 27-37.

Research output: Contribution to journalReview articleResearchpeer-review

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T1 - Illness representations among parents of children and adults with serious mental disorders

T2 - A systematic review and theoretical model

AU - Hasson-Ohayon, Ilanit

AU - Goldzweig, Gil

AU - Lavi-Rotenberg, Adi

AU - Roe, David

AU - Pijnenborg, Gerdina Hendrika Maria

N1 - Copyright © 2019 Elsevier Masson SAS. All rights reserved.

PY - 2019/5

Y1 - 2019/5

N2 - OBJECTIVE: Cognitive representations of an illness have an important impact on psychological outcomes. The current systematic review explored 1) the characteristics of illness representations held by parents of children and adults with serious mental illness (SMI), and 2) the associations of these representations with both parents' and patients' psychological outcomes.METHOD: PSYINFO and PUBMED were screened for eligible studies published between January 2000 and August 2018. Selection was based on PRISMA guidelines. Reference lists of these papers were checked for additional references. Two independent coders extracted all relevant data.RESULTS: The search resulted in 31 relevant studies, which were divided, by type of methodology, into three sections: quantitative, qualitative, and mixed quantitative-qualitative. In each section, findings were divided in accordance with the two research questions.CONCLUSION: Parents struggle to make meaning of their child's illness, often holding stigmatizing ideas about the illness and blaming themselves for its existence. More longitudinal studies that include both of the child's parents, as well as interventional studies, are needed to expand our knowledge of ways to help parents construct more beneficial representations of their children's illnesses.

AB - OBJECTIVE: Cognitive representations of an illness have an important impact on psychological outcomes. The current systematic review explored 1) the characteristics of illness representations held by parents of children and adults with serious mental illness (SMI), and 2) the associations of these representations with both parents' and patients' psychological outcomes.METHOD: PSYINFO and PUBMED were screened for eligible studies published between January 2000 and August 2018. Selection was based on PRISMA guidelines. Reference lists of these papers were checked for additional references. Two independent coders extracted all relevant data.RESULTS: The search resulted in 31 relevant studies, which were divided, by type of methodology, into three sections: quantitative, qualitative, and mixed quantitative-qualitative. In each section, findings were divided in accordance with the two research questions.CONCLUSION: Parents struggle to make meaning of their child's illness, often holding stigmatizing ideas about the illness and blaming themselves for its existence. More longitudinal studies that include both of the child's parents, as well as interventional studies, are needed to expand our knowledge of ways to help parents construct more beneficial representations of their children's illnesses.

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