Compliance or patient empowerment in online communities: reformation of health care services?

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Abstract

New technologies enable a different organization of the public’s admission to health care services. The article discusses whether online support groups in patient treatment are to be understood in the light of patient empowerment or within the tradition of compliance. The back-ground material of the discussion is complementary data from quantitative research on characteristics of patient support groups, and from two qualitative, in depth studies of the impact of patient networks for lung patients and for women with fertility problems. We conclude that in spite of the potential of online communities of opening up health care to the critical voice of the public, the quantitative and qualitative studies surprisingly point to a synthesis of the otherwise opposite positions of empowerment and compliance in patient care. Thereby the critical potential of online communities in health care services seems reverted into configuring ideal patients from diverse users.
Translated title of the contributionKomplience eller patient empowerment i online fællesskaber på sundhed.dk:: reformation af sundhedsydelser?
Original languageEnglish
Title of host publicationInformation Technology in Health Care : Socio-Technical Approaches 2010 - From Safe Systems to Patient Safety
EditorsChristian Nøhr, Jos Aarts
Number of pages7
PublisherIOS Press
Publication date2010
Pages141-147
ISBN (Print)978-1-60750-568-6
DOIs
Publication statusPublished - 2010
EventInternational Conference on Information Technology in Health Care - Aalborg, Denmark
Duration: 23 Jun 201024 Jun 2010
Conference number: 4
http://www.ithc2010.org/

Conference

ConferenceInternational Conference on Information Technology in Health Care
Number4
CountryDenmark
CityAalborg
Period23/06/201024/06/2010
Internet address
SeriesStudies in Health Technology and Informatics
Volume157
ISSN0926-9630

Cite this

Wentzer, H., & Bygholm, A. (2010). Compliance or patient empowerment in online communities: reformation of health care services? In C. Nøhr, & J. Aarts (Eds.), Information Technology in Health Care: Socio-Technical Approaches 2010 - From Safe Systems to Patient Safety (pp. 141-147). IOS Press. Studies in Health Technology and Informatics, Vol.. 157 https://doi.org/10.3233/978-1-60750-569-3-141