Living with a partner with dementia: a systematic review and thematic synthesis of spouses’ lived experiences of changes in their everyday lives

Research output: Contribution to conference without publisher/journalPosterResearchpeer-review

Abstract

ABSTRACT
Objectives: Dementia causes dramatic changes in everyday-living for spouses. Occured changes in marital relationship, force spouses to perform more both mentally and physically. Leading to a spousal perceived burden. To improve understanding of spouses’ needs, spouses lived experiences is needed. The aim was to identify and synthesise qualitative studies on spouses’ lived experiences of living with a partner with dementia.
Methods: A systematic search was undertaken in January 2017. Six databases (CINAHL, Cochrane Library, Embase, PubMed, PsycINFO and Sociological Abstracts) were searched, using search terms in accordance with PICo. A descriptive synthesis and a thematic synthesis were undertaken.
Findings: Fifteen studies met the inclusion criteria. Three themes derived from the analysis 1) Noticing changes in everyday life 2) Transformation to a new marital relation in everyday life, with
corresponding sub-themes; changes in marital relationship, management of the transitioned marital relation in everyday life 3) Planning the future.
Conclusion: Findings provide an overview of how spouses notice changes and transform their marital relationships in everyday-life. Findings offer a deeper understanding of changes that occurs over time while the partner is living at home. Findings contribute with knowledge on spouses’ experiences of changes in early-stages of dementia. Interventions supporting spouses are needed.
Original languageEnglish
Publication date22 Aug 2017
Publication statusPublished - 22 Aug 2017
EventNordisk Folkesundhedskonference - Aalborg, Denmark
Duration: 22 Aug 201725 Aug 2017
Conference number: 12
http://www.nordiskfolkesundhedskonference.dk

Conference

ConferenceNordisk Folkesundhedskonference
Number12
Country/TerritoryDenmark
CityAalborg
Period22/08/201725/08/2017
Internet address

Keywords

  • Informal caregivers
  • Dementia
  • Everyday life

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  • Nordisk Folkesundhedskonference

    Camilla Dindler (Participant), Nanna Ahlmark (Participant) & Bodil Schroll Harboe (Participant)

    23 Aug 2017

    Activity: Attending an eventOrganisation or participation in workshops, courses, or seminars

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