PAINSTORIES – exploring the challenges, barriers and self-management needs in adolescents with knee pain: a qualitative study with semi-structured interviews

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Abstract

Introduction:
Adolescent knee pain is common, and is associated with poor prognosis. One obstacle when treating adolescents is ensuring adherence to treatment, and teaching them to manage THEIR knee pain. This study investigates the challenges and barriers of adolescents with knee pain by conceptualizing self-management as problem-based. The aim is to develop a framework for designing patient education resources for this population, supporting the acquisition of self-management skills for everyday life.

Materials and Methods:
14 young adults with long-standing knee pain, that began during adolescence were recruited from the ‘APA2011’-cohort. Informants participated in a single person semi-structured interview, with a recall exercise. Data were recorded, transcribed, and analyzed using ‘The general inductive approach for analyzing qualitative data”, to extract thematic patterns.

Results:
The coding of data revealed a model of 4 main, 10 generic and 27 sub-categories organized around ‘challenges and barriers’. Further coding outlined a hierarchy of clusters, labeled ‘apprehension’, ‘knowledge’, ‘contextual’ and ‘social/value’ -barriers, which constituted challenges participants had to navigate to progress towards mastery of the condition. From this, four learning objectives were identified as ‘acceptance of injury’, ‘familiarization and decision making’, ‘confrontation vs limitation’ and ‘reconceptualization’ which served as the canvas for the adolescents’ self-management at distinct stages of their knee pain

Conclusion:
These preliminary findings indicate that a framework for patient education should not focus on a one-fits-all approach. Emphasis should be on identifying the challenges the adolescent is facing, and aligning learning objectives to these, by providing effective exercises which facilitate the learning process.
Translated title of the contributionPAINSTORIES - en afdækning af unge med knæsmerters udfordringer, barrierer og egenomsorgsbehov via semi-strukturerede forskningsinterviews
Original languageEnglish
Publication date1 Feb 2018
Number of pages1
Publication statusPublished - 1 Feb 2018
Event14th Scandinavian Congress of Medicine & Science in Sports - Copenhagen, Denmark
Duration: 1 Feb 20183 Feb 2018

Conference

Conference14th Scandinavian Congress of Medicine & Science in Sports
Country/TerritoryDenmark
CityCopenhagen
Period01/02/201803/02/2018

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