People Centerednes, Chronic Conditions, and Diversity Sensitive eHealth: Exploring Emancipation of the 'Health Care System' and the 'Patient' in Health Informatics

Lars Botin*, Pernille Scholdan Bertelsen, Lars Kayser, Paul Turner, Sidsel Villumsen, Christian Nøhr

*Corresponding author

Research output: Contribution to journalJournal articleResearchpeer-review

1 Citation (Scopus)
3 Downloads (Pure)

Abstract

Health care systems struggle to consistently deliver integrated high-quality, safe,and patient-centered care to all in an economically sustainable manner. Inequity of access to healthcare services and variation in diagnostic and treatment outcomes are common. Further, as healthcare systems become ever more complex, iatrogenesis and counter productivity have emerged as realdangers. In exploring this paradox, this paper considers a subset of those in society living with chronicconditions. Their attributes and circumstances have led to them being marginalized or excludedfrom ‘end-user’ engagement and/or from their requirements being incorporated into technologysupported chronic disease management initiatives. Significantly, these citizens are often the mostvulnerable and socially disadvantaged and tend to achieve poorer results and cost more per capitathan the ‘average patient’ in their interactions with the health care system. Critically, this paperargues that a truly people-centered technology supported chronic care system can only be designedby understanding and responding to the needs, attributes and capabilities of the most vulnerable insociety. This paper suggests innovative ways of supporting interactions with these ‘end-users’ andhighlights how reflection on these approaches can contribute to emancipating the health system tomove towards more socially inclusive eHealth solutions.
Original languageEnglish
JournalLife
Volume10
Issue number12
Number of pages14
DOIs
Publication statusPublished - 7 Dec 2020

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