TY - JOUR
T1 - People Centerednes, Chronic Conditions, and Diversity Sensitive eHealth
T2 - Exploring Emancipation of the 'Health Care System' and the 'Patient' in Health Informatics
AU - Botin, Lars
AU - Bertelsen, Pernille Scholdan
AU - Kayser, Lars
AU - Turner, Paul
AU - Villumsen, Sidsel
AU - Nøhr, Christian Gradhandt
PY - 2020/12/7
Y1 - 2020/12/7
N2 - Health care systems struggle to consistently deliver integrated high-quality, safe,and patient-centered care to all in an economically sustainable manner. Inequity of access to healthcare services and variation in diagnostic and treatment outcomes are common. Further, as healthcare systems become ever more complex, iatrogenesis and counter productivity have emerged as realdangers. In exploring this paradox, this paper considers a subset of those in society living with chronicconditions. Their attributes and circumstances have led to them being marginalized or excludedfrom ‘end-user’ engagement and/or from their requirements being incorporated into technologysupported chronic disease management initiatives. Significantly, these citizens are often the mostvulnerable and socially disadvantaged and tend to achieve poorer results and cost more per capitathan the ‘average patient’ in their interactions with the health care system. Critically, this paperargues that a truly people-centered technology supported chronic care system can only be designedby understanding and responding to the needs, attributes and capabilities of the most vulnerable insociety. This paper suggests innovative ways of supporting interactions with these ‘end-users’ andhighlights how reflection on these approaches can contribute to emancipating the health system tomove towards more socially inclusive eHealth solutions.
AB - Health care systems struggle to consistently deliver integrated high-quality, safe,and patient-centered care to all in an economically sustainable manner. Inequity of access to healthcare services and variation in diagnostic and treatment outcomes are common. Further, as healthcare systems become ever more complex, iatrogenesis and counter productivity have emerged as realdangers. In exploring this paradox, this paper considers a subset of those in society living with chronicconditions. Their attributes and circumstances have led to them being marginalized or excludedfrom ‘end-user’ engagement and/or from their requirements being incorporated into technologysupported chronic disease management initiatives. Significantly, these citizens are often the mostvulnerable and socially disadvantaged and tend to achieve poorer results and cost more per capitathan the ‘average patient’ in their interactions with the health care system. Critically, this paperargues that a truly people-centered technology supported chronic care system can only be designedby understanding and responding to the needs, attributes and capabilities of the most vulnerable insociety. This paper suggests innovative ways of supporting interactions with these ‘end-users’ andhighlights how reflection on these approaches can contribute to emancipating the health system tomove towards more socially inclusive eHealth solutions.
U2 - 10.3390/life10120329
DO - 10.3390/life10120329
M3 - Journal article
SN - 2075-1729
VL - 10
SP - 1
EP - 14
JO - Life
JF - Life
IS - 12
M1 - 329
ER -