Telling the Story Right: How Therapists Aid Stroke Patients Interpret Personal Visualized Game Performance Data

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Abstract

Data visualizations of training performance can provide patients with insight and motivation to engage in future self-training sessions. Still, patients are in practice prone to misinterpret their data in practice due to lack of health numeracy.
This paper contributes an ethnographic case study of how an occupational therapist employed storytelling
to help 14 sub-acute stroke patients interpret visualizations of their training performance from a cognitive rehabilitation game.
The Trail Making Test based game visualized performance through a timeline, heat maps, and aggregate visualizations co-designed with the therapist.
The interactive visualizations enabled the therapist to strategically order and emphasize information to support patients' understanding of their health.
We provide an analysis of the therapist's storytelling strategy in cognitive training that depended on patient self-awareness. The paper concludes with a discussion of tensions for designing storytelling in visualizations of health data for self-care systems targeted at stroke patients in clinical and home contexts.
Original languageEnglish
Title of host publicationProceedings of the 13th EAI International Conference on Pervasive Computing Technologies for Healthcare, PervasiveHealth 2019
Number of pages9
PublisherAssociation for Computing Machinery
Publication date20 May 2019
Pages435-443
ISBN (Electronic)9781450361262
DOIs
Publication statusPublished - 20 May 2019
EventEAI International Conference on Pervasive Computing Technologies for Healthcare - Trento, Italy
Duration: 20 May 201923 May 2019
Conference number: 13

Conference

ConferenceEAI International Conference on Pervasive Computing Technologies for Healthcare
Number13
CountryItaly
CityTrento
Period20/05/201923/05/2019

Keywords

  • self-care technology
  • patient self-awareness
  • trail making test
  • heat map visualization
  • time line visualization
  • rehabilitation
  • data interpretation
  • Storytelling system

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