Telling the Story Right: How Therapists Aid Stroke Patients Interpret Personal Visualized Game Performance Data

Research output: Contribution to book/anthology/report/conference proceedingArticle in proceedingResearchpeer-review

1 Citation (Scopus)
34 Downloads (Pure)

Abstract

Data visualizations of training performance can provide patients with insight and motivation to engage in future self-training sessions. Still, patients are in practice prone to misinterpret their data in practice due to lack of health numeracy.
This paper contributes an ethnographic case study of how an occupational therapist employed storytelling
to help 14 sub-acute stroke patients interpret visualizations of their training performance from a cognitive rehabilitation game.
The Trail Making Test based game visualized performance through a timeline, heat maps, and aggregate visualizations co-designed with the therapist.
The interactive visualizations enabled the therapist to strategically order and emphasize information to support patients' understanding of their health.
We provide an analysis of the therapist's storytelling strategy in cognitive training that depended on patient self-awareness. The paper concludes with a discussion of tensions for designing storytelling in visualizations of health data for self-care systems targeted at stroke patients in clinical and home contexts.
Original languageEnglish
Title of host publicationIMPACT Workshop : Improving healthcare Management through service design and PAtient empowerment and Collaboration Technologies
Number of pages9
PublisherAssociation for Computing Machinery
Publication dateMay 2019
Pages435-443
ISBN (Electronic)978-1-4503-6126-2/19/05
DOIs
Publication statusPublished - May 2019

Fingerprint

Visualization
Health
Data visualization
Patient rehabilitation

Keywords

  • self-care technology
  • patient self-awareness
  • trail making test
  • heat map visualization
  • time line visualization
  • rehabilitation
  • data interpretation
  • Storytelling system

Cite this

Hougaard, B. I., & Knoche, H. (2019). Telling the Story Right: How Therapists Aid Stroke Patients Interpret Personal Visualized Game Performance Data. In IMPACT Workshop: Improving healthcare Management through service design and PAtient empowerment and Collaboration Technologies (pp. 435-443). Association for Computing Machinery. https://doi.org/10.1145/3329189.3329239
Hougaard, Bastian Ilsø ; Knoche, Hendrik. / Telling the Story Right: How Therapists Aid Stroke Patients Interpret Personal Visualized Game Performance Data. IMPACT Workshop: Improving healthcare Management through service design and PAtient empowerment and Collaboration Technologies. Association for Computing Machinery, 2019. pp. 435-443
@inproceedings{d24ecf2b558243098398d236a729d35e,
title = "Telling the Story Right: How Therapists Aid Stroke Patients Interpret Personal Visualized Game Performance Data",
abstract = "Data visualizations of training performance can provide patients with insight and motivation to engage in future self-training sessions. Still, patients are in practice prone to misinterpret their data in practice due to lack of health numeracy.This paper contributes an ethnographic case study of how an occupational therapist employed storytelling to help 14 sub-acute stroke patients interpret visualizations of their training performance from a cognitive rehabilitation game.The Trail Making Test based game visualized performance through a timeline, heat maps, and aggregate visualizations co-designed with the therapist.The interactive visualizations enabled the therapist to strategically order and emphasize information to support patients' understanding of their health.We provide an analysis of the therapist's storytelling strategy in cognitive training that depended on patient self-awareness. The paper concludes with a discussion of tensions for designing storytelling in visualizations of health data for self-care systems targeted at stroke patients in clinical and home contexts.",
keywords = "self-care technology, patient self-awareness, trail making test, heat map visualization, time line visualization, rehabilitation, data interpretation, Storytelling system",
author = "Hougaard, {Bastian Ils{\o}} and Hendrik Knoche",
year = "2019",
month = "5",
doi = "10.1145/3329189.3329239",
language = "English",
pages = "435--443",
booktitle = "IMPACT Workshop",
publisher = "Association for Computing Machinery",
address = "United States",

}

Hougaard, BI & Knoche, H 2019, Telling the Story Right: How Therapists Aid Stroke Patients Interpret Personal Visualized Game Performance Data. in IMPACT Workshop: Improving healthcare Management through service design and PAtient empowerment and Collaboration Technologies. Association for Computing Machinery, pp. 435-443. https://doi.org/10.1145/3329189.3329239

Telling the Story Right: How Therapists Aid Stroke Patients Interpret Personal Visualized Game Performance Data. / Hougaard, Bastian Ilsø; Knoche, Hendrik.

IMPACT Workshop: Improving healthcare Management through service design and PAtient empowerment and Collaboration Technologies. Association for Computing Machinery, 2019. p. 435-443.

Research output: Contribution to book/anthology/report/conference proceedingArticle in proceedingResearchpeer-review

TY - GEN

T1 - Telling the Story Right: How Therapists Aid Stroke Patients Interpret Personal Visualized Game Performance Data

AU - Hougaard, Bastian Ilsø

AU - Knoche, Hendrik

PY - 2019/5

Y1 - 2019/5

N2 - Data visualizations of training performance can provide patients with insight and motivation to engage in future self-training sessions. Still, patients are in practice prone to misinterpret their data in practice due to lack of health numeracy.This paper contributes an ethnographic case study of how an occupational therapist employed storytelling to help 14 sub-acute stroke patients interpret visualizations of their training performance from a cognitive rehabilitation game.The Trail Making Test based game visualized performance through a timeline, heat maps, and aggregate visualizations co-designed with the therapist.The interactive visualizations enabled the therapist to strategically order and emphasize information to support patients' understanding of their health.We provide an analysis of the therapist's storytelling strategy in cognitive training that depended on patient self-awareness. The paper concludes with a discussion of tensions for designing storytelling in visualizations of health data for self-care systems targeted at stroke patients in clinical and home contexts.

AB - Data visualizations of training performance can provide patients with insight and motivation to engage in future self-training sessions. Still, patients are in practice prone to misinterpret their data in practice due to lack of health numeracy.This paper contributes an ethnographic case study of how an occupational therapist employed storytelling to help 14 sub-acute stroke patients interpret visualizations of their training performance from a cognitive rehabilitation game.The Trail Making Test based game visualized performance through a timeline, heat maps, and aggregate visualizations co-designed with the therapist.The interactive visualizations enabled the therapist to strategically order and emphasize information to support patients' understanding of their health.We provide an analysis of the therapist's storytelling strategy in cognitive training that depended on patient self-awareness. The paper concludes with a discussion of tensions for designing storytelling in visualizations of health data for self-care systems targeted at stroke patients in clinical and home contexts.

KW - self-care technology

KW - patient self-awareness

KW - trail making test

KW - heat map visualization

KW - time line visualization

KW - rehabilitation

KW - data interpretation

KW - Storytelling system

U2 - 10.1145/3329189.3329239

DO - 10.1145/3329189.3329239

M3 - Article in proceeding

SP - 435

EP - 443

BT - IMPACT Workshop

PB - Association for Computing Machinery

ER -

Hougaard BI, Knoche H. Telling the Story Right: How Therapists Aid Stroke Patients Interpret Personal Visualized Game Performance Data. In IMPACT Workshop: Improving healthcare Management through service design and PAtient empowerment and Collaboration Technologies. Association for Computing Machinery. 2019. p. 435-443 https://doi.org/10.1145/3329189.3329239