Telling the Story Right: How Therapists Aid Stroke Patients Interpret Personal Visualized Game Performance Data

Bastian Ilsø Hougaard; Hendrik Knoche

doi:10.1145/3329189.3329239

Telling the Story Right: How Therapists Aid Stroke Patients Interpret Personal Visualized Game Performance Data

Research output: Contribution to book/anthology/report/conference proceeding › Article in proceeding › Research › peer-review

4 Citations (Scopus)

274 Downloads (Pure)

Abstract

Data visualizations of training performance can provide patients with insight and motivation to engage in future self-training sessions. Still, patients are in practice prone to misinterpret their data in practice due to lack of health numeracy.
This paper contributes an ethnographic case study of how an occupational therapist employed storytelling
to help 14 sub-acute stroke patients interpret visualizations of their training performance from a cognitive rehabilitation game.
The Trail Making Test based game visualized performance through a timeline, heat maps, and aggregate visualizations co-designed with the therapist.
The interactive visualizations enabled the therapist to strategically order and emphasize information to support patients' understanding of their health.
We provide an analysis of the therapist's storytelling strategy in cognitive training that depended on patient self-awareness. The paper concludes with a discussion of tensions for designing storytelling in visualizations of health data for self-care systems targeted at stroke patients in clinical and home contexts.

Original language	English
Title of host publication	Proceedings of the 13th EAI International Conference on Pervasive Computing Technologies for Healthcare, PervasiveHealth 2019
Number of pages	9
Publisher	Association for Computing Machinery
Publication date	20 May 2019
Pages	435-443
ISBN (Electronic)	9781450361262
DOIs	https://doi.org/10.1145/3329189.3329239
Publication status	Published - 20 May 2019
Event	EAI International Conference on Pervasive Computing Technologies for Healthcare - Trento, Italy Duration: 20 May 2019 → 23 May 2019 Conference number: 13

Conference

Conference	EAI International Conference on Pervasive Computing Technologies for Healthcare
Number	13
Country/Territory	Italy
City	Trento
Period	20/05/2019 → 23/05/2019

Keywords

self-care technology
patient self-awareness
trail making test
heat map visualization
time line visualization
rehabilitation
data interpretation
Storytelling system

Access to Document

10.1145/3329189.3329239Licence: Other

PH19_TellingTheStoryRight_AuthorsVersionAccepted author manuscript, 2.9 MBLicence: CC BY-ND 4.0

AUB Link

Search for the material in Aalborg University Library's search engine

Cite this

Hougaard, B. I., & Knoche, H. (2019). Telling the Story Right: How Therapists Aid Stroke Patients Interpret Personal Visualized Game Performance Data. In Proceedings of the 13th EAI International Conference on Pervasive Computing Technologies for Healthcare, PervasiveHealth 2019 (pp. 435-443). Association for Computing Machinery. https://doi.org/10.1145/3329189.3329239

@inproceedings{d24ecf2b558243098398d236a729d35e,

title = "Telling the Story Right: How Therapists Aid Stroke Patients Interpret Personal Visualized Game Performance Data",

abstract = "Data visualizations of training performance can provide patients with insight and motivation to engage in future self-training sessions. Still, patients are in practice prone to misinterpret their data in practice due to lack of health numeracy.This paper contributes an ethnographic case study of how an occupational therapist employed storytelling to help 14 sub-acute stroke patients interpret visualizations of their training performance from a cognitive rehabilitation game.The Trail Making Test based game visualized performance through a timeline, heat maps, and aggregate visualizations co-designed with the therapist.The interactive visualizations enabled the therapist to strategically order and emphasize information to support patients' understanding of their health.We provide an analysis of the therapist's storytelling strategy in cognitive training that depended on patient self-awareness. The paper concludes with a discussion of tensions for designing storytelling in visualizations of health data for self-care systems targeted at stroke patients in clinical and home contexts.",

keywords = "self-care technology, patient self-awareness, trail making test, heat map visualization, time line visualization, rehabilitation, data interpretation, Storytelling system",

author = "Hougaard, {Bastian Ils{\o}} and Hendrik Knoche",

year = "2019",

month = may,

day = "20",

doi = "10.1145/3329189.3329239",

language = "English",

pages = "435--443",

booktitle = "Proceedings of the 13th EAI International Conference on Pervasive Computing Technologies for Healthcare, PervasiveHealth 2019",

publisher = "Association for Computing Machinery",

address = "United States",

note = "EAI International Conference on Pervasive Computing Technologies for Healthcare ; Conference date: 20-05-2019 Through 23-05-2019",

}

Hougaard, BI & Knoche, H 2019, Telling the Story Right: How Therapists Aid Stroke Patients Interpret Personal Visualized Game Performance Data. in Proceedings of the 13th EAI International Conference on Pervasive Computing Technologies for Healthcare, PervasiveHealth 2019. Association for Computing Machinery, pp. 435-443, EAI International Conference on Pervasive Computing Technologies for Healthcare, Trento, Italy, 20/05/2019. https://doi.org/10.1145/3329189.3329239

Telling the Story Right: How Therapists Aid Stroke Patients Interpret Personal Visualized Game Performance Data. / Hougaard, Bastian Ilsø ; Knoche, Hendrik.
Proceedings of the 13th EAI International Conference on Pervasive Computing Technologies for Healthcare, PervasiveHealth 2019. Association for Computing Machinery, 2019. p. 435-443.

Research output: Contribution to book/anthology/report/conference proceeding › Article in proceeding › Research › peer-review

TY - GEN

T1 - Telling the Story Right

T2 - EAI International Conference on Pervasive Computing Technologies for Healthcare

AU - Hougaard, Bastian Ilsø

AU - Knoche, Hendrik

N1 - Conference code: 13

PY - 2019/5/20

Y1 - 2019/5/20

N2 - Data visualizations of training performance can provide patients with insight and motivation to engage in future self-training sessions. Still, patients are in practice prone to misinterpret their data in practice due to lack of health numeracy.This paper contributes an ethnographic case study of how an occupational therapist employed storytelling to help 14 sub-acute stroke patients interpret visualizations of their training performance from a cognitive rehabilitation game.The Trail Making Test based game visualized performance through a timeline, heat maps, and aggregate visualizations co-designed with the therapist.The interactive visualizations enabled the therapist to strategically order and emphasize information to support patients' understanding of their health.We provide an analysis of the therapist's storytelling strategy in cognitive training that depended on patient self-awareness. The paper concludes with a discussion of tensions for designing storytelling in visualizations of health data for self-care systems targeted at stroke patients in clinical and home contexts.

AB - Data visualizations of training performance can provide patients with insight and motivation to engage in future self-training sessions. Still, patients are in practice prone to misinterpret their data in practice due to lack of health numeracy.This paper contributes an ethnographic case study of how an occupational therapist employed storytelling to help 14 sub-acute stroke patients interpret visualizations of their training performance from a cognitive rehabilitation game.The Trail Making Test based game visualized performance through a timeline, heat maps, and aggregate visualizations co-designed with the therapist.The interactive visualizations enabled the therapist to strategically order and emphasize information to support patients' understanding of their health.We provide an analysis of the therapist's storytelling strategy in cognitive training that depended on patient self-awareness. The paper concludes with a discussion of tensions for designing storytelling in visualizations of health data for self-care systems targeted at stroke patients in clinical and home contexts.

KW - self-care technology

KW - patient self-awareness

KW - trail making test

KW - heat map visualization

KW - time line visualization

KW - rehabilitation

KW - data interpretation

KW - Storytelling system

UR - http://www.scopus.com/inward/record.url?scp=85067870175&partnerID=8YFLogxK

U2 - 10.1145/3329189.3329239

DO - 10.1145/3329189.3329239

M3 - Article in proceeding

SP - 435

EP - 443

BT - Proceedings of the 13th EAI International Conference on Pervasive Computing Technologies for Healthcare, PervasiveHealth 2019

PB - Association for Computing Machinery

Y2 - 20 May 2019 through 23 May 2019

ER -

Telling the Story Right: How Therapists Aid Stroke Patients Interpret Personal Visualized Game Performance Data

Abstract

Conference

Keywords

Access to Document

AUB Link

Other files and links

Fingerprint

IRENE COST action CA18118

IRENE: Implementation Research Network in Stroke Care Quality, COST action CA18118

RehApps: Rehab apps for cognitive disabilities

Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system

How annotated visualizations in self-care technology supported a stroke survivor in goal setting and reflection

Using Spatio-Temporal Data from Trail-Making Tests to Assess Neglect

Cite this

Telling the Story Right: How Therapists Aid Stroke Patients Interpret Personal Visualized Game Performance Data

Abstract

Conference

Keywords

Access to Document

AUB Link

Other files and links

Fingerprint

Projects

IRENE COST action CA18118

IRENE: Implementation Research Network in Stroke Care Quality, COST action CA18118

RehApps: Rehab apps for cognitive disabilities

Research output

Am I coughing more than usual? Patient reflections and user needs on tracking COPD data in a telehealth system

How annotated visualizations in self-care technology supported a stroke survivor in goal setting and reflection

Using Spatio-Temporal Data from Trail-Making Tests to Assess Neglect

Cite this