Understanding what matters most to patients in acute care in seven countries, using the flash mob study design

Eva S. van den Ende; Bo Schouten; Marjolein N.T. Kremers; Tim Cooksley; Chris P. Subbe; Immo Weichert; Louise S. van Galen; Harm R. Haak; John Kellett; Jelmer Alsma; Victoria Siegrist; Mark Holland; Erika F. Christensen; Colin A. Graham; Ling Yan Leung; Line E. Laugesen; Hanneke Merten; Fraz Mir; Rachel M. Kidney; Mikkel Brabrand; Prabath W.B. Nanayakkara; Christian H. Nickel; all local collaborators; Vibe Maria Laden Nielsen; Marc Ludwig; Henriette Sloth Høg

doi:10.1186/s12913-021-06459-4

Understanding what matters most to patients in acute care in seven countries, using the flash mob study design

Eva S. van den Ende, Bo Schouten, Marjolein N.T. Kremers, Tim Cooksley, Chris P. Subbe, Immo Weichert, Louise S. van Galen, Harm R. Haak, John Kellett, Jelmer Alsma, Victoria Siegrist, Mark Holland, Erika F. Christensen, Colin A. Graham, Ling Yan Leung, Line E. Laugesen, Hanneke Merten, Fraz Mir, Rachel M. Kidney, Mikkel BrabrandPrabath W.B. Nanayakkara, Christian H. Nickel, all local collaborators, Vibe Maria Laden Nielsen (Member of study group), Marc Ludwig (Member of study group), Henriette Sloth Høg (Member of study group)

Research output: Contribution to journal › Journal article › Research › peer-review

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Abstract

BACKGROUND: Truly patient-centred care needs to be aligned with what patients consider important, and is highly desirable in the first 24 h of an acute admission, as many decisions are made during this period. However, there is limited knowledge on what matters most to patients in this phase of their hospital stay. The objective of this study was to identify what mattered most to patients in acute care and to assess the patient perspective as to whether their treating doctors were aware of this. METHODS: This was a large-scale, qualitative, flash mob study, conducted simultaneously in sixty-six hospitals in seven countries, starting November 14th 2018, ending 50 h later. One thousand eight hundred fifty adults in the first 24 h of an acute medical admission were interviewed on what mattered most to them, why this mattered and whether they felt the treating doctor was aware of this. RESULTS: The most reported answers to "what matters most (and why)?" were 'getting better or being in good health' (why: to be with family/friends or pick-up life again), 'getting home' (why: more comfortable at home or to take care of someone) and 'having a diagnosis' (why: to feel less anxious or insecure). Of all patients, 51.9% felt the treating doctor did not know what mattered most to them. CONCLUSIONS: The priorities for acutely admitted patients were ostensibly disease- and care-oriented and thus in line with the hospitals' own priorities. However, answers to why these were important were diverse, more personal, and often related to psychological well-being and relations. A large group of patients felt their treating doctor did not know what mattered most to them. Explicitly asking patients what is important and why, could help healthcare professionals to get to know the person behind the patient, which is essential in delivering patient-centred care. TRIAL REGISTRATION: NTR (Netherlands Trial Register) NTR7538 .

Original language	English
Article number	474
Journal	BMC Health Services Research
Volume	21
Issue number	1
Number of pages	11
ISSN	1472-6963
DOIs	https://doi.org/10.1186/s12913-021-06459-4
Publication status	Published - 19 May 2021

Bibliographical note

Correction to article has been submitted: https://doi.org/10.1186/s12913-021-06580-4

Keywords

Acute care
Emergency medicine
Patient-centred care
Patient-physician communication
Quality of care
Research methods
What matters most

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10.1186/s12913-021-06459-4Licence: CC BY 4.0

van den Ende et al (2021) Understanding what matters most to patients in acute care in seven countries, using the flash mob study designFinal published version, 0.99 MBLicence: CC BY 4.0

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van den Ende, E. S., Schouten, B., Kremers, M. N. T., Cooksley, T., Subbe, C. P., Weichert, I., van Galen, L. S., Haak, H. R., Kellett, J., Alsma, J., Siegrist, V., Holland, M., Christensen, E. F., Graham, C. A., Leung, L. Y., Laugesen, L. E., Merten, H., Mir, F., Kidney, R. M., ... Høg, H. S. (2021). Understanding what matters most to patients in acute care in seven countries, using the flash mob study design. BMC Health Services Research, 21(1), Article 474. https://doi.org/10.1186/s12913-021-06459-4

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title = "Understanding what matters most to patients in acute care in seven countries, using the flash mob study design",

abstract = "BACKGROUND: Truly patient-centred care needs to be aligned with what patients consider important, and is highly desirable in the first 24 h of an acute admission, as many decisions are made during this period. However, there is limited knowledge on what matters most to patients in this phase of their hospital stay. The objective of this study was to identify what mattered most to patients in acute care and to assess the patient perspective as to whether their treating doctors were aware of this. METHODS: This was a large-scale, qualitative, flash mob study, conducted simultaneously in sixty-six hospitals in seven countries, starting November 14th 2018, ending 50 h later. One thousand eight hundred fifty adults in the first 24 h of an acute medical admission were interviewed on what mattered most to them, why this mattered and whether they felt the treating doctor was aware of this. RESULTS: The most reported answers to {"}what matters most (and why)?{"} were 'getting better or being in good health' (why: to be with family/friends or pick-up life again), 'getting home' (why: more comfortable at home or to take care of someone) and 'having a diagnosis' (why: to feel less anxious or insecure). Of all patients, 51.9% felt the treating doctor did not know what mattered most to them. CONCLUSIONS: The priorities for acutely admitted patients were ostensibly disease- and care-oriented and thus in line with the hospitals' own priorities. However, answers to why these were important were diverse, more personal, and often related to psychological well-being and relations. A large group of patients felt their treating doctor did not know what mattered most to them. Explicitly asking patients what is important and why, could help healthcare professionals to get to know the person behind the patient, which is essential in delivering patient-centred care. TRIAL REGISTRATION: NTR (Netherlands Trial Register) NTR7538 .",

keywords = "Acute care, Emergency medicine, Patient-centred care, Patient-physician communication, Quality of care, Research methods, What matters most",

author = "{van den Ende}, {Eva S.} and Bo Schouten and Kremers, {Marjolein N.T.} and Tim Cooksley and Subbe, {Chris P.} and Immo Weichert and {van Galen}, {Louise S.} and Haak, {Harm R.} and John Kellett and Jelmer Alsma and Victoria Siegrist and Mark Holland and Christensen, {Erika F.} and Graham, {Colin A.} and Leung, {Ling Yan} and Laugesen, {Line E.} and Hanneke Merten and Fraz Mir and Kidney, {Rachel M.} and Mikkel Brabrand and Nanayakkara, {Prabath W.B.} and Nickel, {Christian H.} and {all local collaborators} and Nielsen, {Vibe Maria Laden} and Marc Ludwig and H{\o}g, {Henriette Sloth}",

note = "Correction to article has been submitted: https://doi.org/10.1186/s12913-021-06580-4",

year = "2021",

month = may,

day = "19",

doi = "10.1186/s12913-021-06459-4",

language = "English",

volume = "21",

journal = "BMC Health Services Research",

issn = "1472-6963",

publisher = "BioMed Central",

number = "1",

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van den Ende, ES, Schouten, B, Kremers, MNT, Cooksley, T, Subbe, CP, Weichert, I, van Galen, LS, Haak, HR, Kellett, J, Alsma, J, Siegrist, V, Holland, M, Christensen, EF, Graham, CA, Leung, LY, Laugesen, LE, Merten, H, Mir, F, Kidney, RM, Brabrand, M, Nanayakkara, PWB, Nickel, CH, all local collaborators, Nielsen, VML , Ludwig, M & Høg, HS 2021, 'Understanding what matters most to patients in acute care in seven countries, using the flash mob study design', BMC Health Services Research, vol. 21, no. 1, 474. https://doi.org/10.1186/s12913-021-06459-4

TY - JOUR

T1 - Understanding what matters most to patients in acute care in seven countries, using the flash mob study design

AU - van den Ende, Eva S.

AU - Schouten, Bo

AU - Kremers, Marjolein N.T.

AU - Cooksley, Tim

AU - Subbe, Chris P.

AU - Weichert, Immo

AU - van Galen, Louise S.

AU - Haak, Harm R.

AU - Kellett, John

AU - Alsma, Jelmer

AU - Siegrist, Victoria

AU - Holland, Mark

AU - Christensen, Erika F.

AU - Graham, Colin A.

AU - Leung, Ling Yan

AU - Laugesen, Line E.

AU - Merten, Hanneke

AU - Mir, Fraz

AU - Kidney, Rachel M.

AU - Brabrand, Mikkel

AU - Nanayakkara, Prabath W.B.

AU - Nickel, Christian H.

AU - all local collaborators

A2 - Nielsen, Vibe Maria Laden

A2 - Ludwig, Marc

A2 - Høg, Henriette Sloth

N1 - Correction to article has been submitted: https://doi.org/10.1186/s12913-021-06580-4

PY - 2021/5/19

Y1 - 2021/5/19

N2 - BACKGROUND: Truly patient-centred care needs to be aligned with what patients consider important, and is highly desirable in the first 24 h of an acute admission, as many decisions are made during this period. However, there is limited knowledge on what matters most to patients in this phase of their hospital stay. The objective of this study was to identify what mattered most to patients in acute care and to assess the patient perspective as to whether their treating doctors were aware of this. METHODS: This was a large-scale, qualitative, flash mob study, conducted simultaneously in sixty-six hospitals in seven countries, starting November 14th 2018, ending 50 h later. One thousand eight hundred fifty adults in the first 24 h of an acute medical admission were interviewed on what mattered most to them, why this mattered and whether they felt the treating doctor was aware of this. RESULTS: The most reported answers to "what matters most (and why)?" were 'getting better or being in good health' (why: to be with family/friends or pick-up life again), 'getting home' (why: more comfortable at home or to take care of someone) and 'having a diagnosis' (why: to feel less anxious or insecure). Of all patients, 51.9% felt the treating doctor did not know what mattered most to them. CONCLUSIONS: The priorities for acutely admitted patients were ostensibly disease- and care-oriented and thus in line with the hospitals' own priorities. However, answers to why these were important were diverse, more personal, and often related to psychological well-being and relations. A large group of patients felt their treating doctor did not know what mattered most to them. Explicitly asking patients what is important and why, could help healthcare professionals to get to know the person behind the patient, which is essential in delivering patient-centred care. TRIAL REGISTRATION: NTR (Netherlands Trial Register) NTR7538 .

AB - BACKGROUND: Truly patient-centred care needs to be aligned with what patients consider important, and is highly desirable in the first 24 h of an acute admission, as many decisions are made during this period. However, there is limited knowledge on what matters most to patients in this phase of their hospital stay. The objective of this study was to identify what mattered most to patients in acute care and to assess the patient perspective as to whether their treating doctors were aware of this. METHODS: This was a large-scale, qualitative, flash mob study, conducted simultaneously in sixty-six hospitals in seven countries, starting November 14th 2018, ending 50 h later. One thousand eight hundred fifty adults in the first 24 h of an acute medical admission were interviewed on what mattered most to them, why this mattered and whether they felt the treating doctor was aware of this. RESULTS: The most reported answers to "what matters most (and why)?" were 'getting better or being in good health' (why: to be with family/friends or pick-up life again), 'getting home' (why: more comfortable at home or to take care of someone) and 'having a diagnosis' (why: to feel less anxious or insecure). Of all patients, 51.9% felt the treating doctor did not know what mattered most to them. CONCLUSIONS: The priorities for acutely admitted patients were ostensibly disease- and care-oriented and thus in line with the hospitals' own priorities. However, answers to why these were important were diverse, more personal, and often related to psychological well-being and relations. A large group of patients felt their treating doctor did not know what mattered most to them. Explicitly asking patients what is important and why, could help healthcare professionals to get to know the person behind the patient, which is essential in delivering patient-centred care. TRIAL REGISTRATION: NTR (Netherlands Trial Register) NTR7538 .

KW - Acute care

KW - Emergency medicine

KW - Patient-centred care

KW - Patient-physician communication

KW - Quality of care

KW - Research methods

KW - What matters most

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DO - 10.1186/s12913-021-06459-4

M3 - Journal article

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AN - SCOPUS:85106587448

SN - 1472-6963

VL - 21

JO - BMC Health Services Research

JF - BMC Health Services Research

IS - 1

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ER -

Understanding what matters most to patients in acute care in seven countries, using the flash mob study design

Abstract

Bibliographical note

Keywords

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AUB Link

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