Understanding what matters most to patients in acute care in seven countries, using the flash mob study design

Eva S. van den Ende, Bo Schouten, Marjolein N.T. Kremers, Tim Cooksley, Chris P. Subbe, Immo Weichert, Louise S. van Galen, Harm R. Haak, John Kellett, Jelmer Alsma, Victoria Siegrist, Mark Holland, Erika F. Christensen, Colin A. Graham, Ling Yan Leung, Line E. Laugesen, Hanneke Merten, Fraz Mir, Rachel M. Kidney, Mikkel BrabrandPrabath W.B. Nanayakkara, Christian H. Nickel, all local collaborators, Vibe Maria Laden Nielsen (Member of study group), Marc Ludwig (Member of study group), Henriette Sloth Høg (Member of study group)

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Abstract

BACKGROUND: Truly patient-centred care needs to be aligned with what patients consider important, and is highly desirable in the first 24 h of an acute admission, as many decisions are made during this period. However, there is limited knowledge on what matters most to patients in this phase of their hospital stay. The objective of this study was to identify what mattered most to patients in acute care and to assess the patient perspective as to whether their treating doctors were aware of this. METHODS: This was a large-scale, qualitative, flash mob study, conducted simultaneously in sixty-six hospitals in seven countries, starting November 14th 2018, ending 50 h later. One thousand eight hundred fifty adults in the first 24 h of an acute medical admission were interviewed on what mattered most to them, why this mattered and whether they felt the treating doctor was aware of this. RESULTS: The most reported answers to "what matters most (and why)?" were 'getting better or being in good health' (why: to be with family/friends or pick-up life again), 'getting home' (why: more comfortable at home or to take care of someone) and 'having a diagnosis' (why: to feel less anxious or insecure). Of all patients, 51.9% felt the treating doctor did not know what mattered most to them. CONCLUSIONS: The priorities for acutely admitted patients were ostensibly disease- and care-oriented and thus in line with the hospitals' own priorities. However, answers to why these were important were diverse, more personal, and often related to psychological well-being and relations. A large group of patients felt their treating doctor did not know what mattered most to them. Explicitly asking patients what is important and why, could help healthcare professionals to get to know the person behind the patient, which is essential in delivering patient-centred care. TRIAL REGISTRATION: NTR (Netherlands Trial Register) NTR7538 .

Original languageEnglish
Article number474
JournalBMC Health Services Research
Volume21
Issue number1
Number of pages11
ISSN1472-6963
DOIs
Publication statusPublished - 19 May 2021

Bibliographical note

Correction to article has been submitted: https://doi.org/10.1186/s12913-021-06580-4

Keywords

  • Acute care
  • Emergency medicine
  • Patient-centred care
  • Patient-physician communication
  • Quality of care
  • Research methods
  • What matters most

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  • Additional file 1 of Understanding what matters most to patients in acute care in seven countries, using the flash mob study design

    van Benthum, S. (Contributor), Balakrishnan, T. (Contributor), collaborators, O. B. O. A. L. (Creator), Dekkers, M. J. (Contributor), Rowling, S. C. (Contributor), Schouten, I. (Creator), Heitz, A. F. (Contributor), Stassen, P. M. (Contributor), Holleman, F. (Contributor), Lindholm, S. F. (Contributor), Lewis, A. (Contributor), Christensen, E. F. (Creator), Mir, F. (Contributor), Alsma, J. (Creator), Cozens, T. (Contributor), Down, A. (Contributor), Kabboue, H. (Contributor), Dees, A. (Contributor), van den Besselaar, J. (Contributor), Green, A. M. (Contributor), Christophersen, T. (Contributor), Schouten, B. (Creator), Lavell, A. (Contributor), Schultz, M. (Contributor), Govers, A. (Contributor), Van Den Beuken, S. J. L. W. (Contributor), Tin, L. W. (Contributor), Seccombe, A. (Contributor), H?g, H. S. (Contributor), van Galen, L. S. (Contributor), Gamst-Jensen, H. (Contributor), Zaalberg, T. (Contributor), Siegert, C. E. H. (Contributor), Jacobs, E. M. G. (Contributor), Skj?t-Arkil, H. (Contributor), Wors?e, M. (Contributor), Karstensen, H. (Contributor), Altemimi, H. (Contributor), Kellett, J. (Creator), Weerasekera, C. (Contributor), Thomsen, T. S. (Contributor), Logtenberg, S. J. J. (Contributor), Yan, L. E. U. N. G. L. (Contributor), Nielsen, S. N. (Contributor), Subbe, C. P. (Creator), Raz, Y. (Contributor), Soe, T. (Contributor), Lo, R. (Contributor), Nickel, C. H. (Creator), Tygesen, G. B. (Contributor), Deenen, S. (Contributor), ter Maaten, J. C. (Contributor), Bouchy Jacobsson, M. M. A. (Contributor), Carels, G. (Contributor), Leung, L. (Contributor), Nielsen, C. D. (Contributor), Jensen, K. M. (Contributor), Timmers, G. (Contributor), Boogers, W. (Contributor), Snijer, B. (Contributor), Weichert, I. (Creator), Nadarajah, C. V. (Contributor), Cooksley, T. (Creator), Soong, J. (Contributor), van Munster, B. V. (Contributor), Bosch, F. H. (Contributor), Nannan Panday, R. S. (Contributor), Aabling, R. (Contributor), Hansen, S. N. (Contributor), Iversen, K. K. (Contributor), Brabrand, M. (Creator), Schinkel, M. (Contributor), Noordzij-Nooteboom, H. S. (Contributor), Todorovac, N. (Contributor), Andersen, K. V. (Contributor), Keurlings, P. A. J. (Contributor), Schattenkerk, D. E. (Contributor), Romano, L. (Contributor), Merten, H. (Creator), van Pelt-Sprangers, P. J. M. (Contributor), Smedegaard, C. (Contributor), Pedersen, L. (Contributor), Ward, D. (Contributor), Nielsen, V. M. L. (Contributor), Anten, S. (Contributor), Kidney, R. M. (Creator), de Kleijn, L. (Contributor), Bri?t-Schipper, N. (Contributor), Graham, C. (Creator), Nanayakkara, P. W. B. (Creator), El Morabit, F. (Contributor), Kreiberg, M. P. B. (Contributor), H?gsgaard, D. (Contributor), Siegrist, V. (Creator), Bove, D. G. (Contributor), Petersen, P. (Contributor), Buunk, G. (Contributor), Hoogerwerf, J. J. (Contributor), Nygaard, H. (Contributor), Barten, D. G. (Contributor), Graham, C. A. (Creator), van den Corput, B. (Contributor), Mikkelsen, V. K. S. (Contributor), Holland, M. (Creator), Kristensen, T. M. (Contributor), van den Ende, E. S. (Contributor), Nashi, N. (Contributor), Kremers, M. N. T. (Creator), Gans, E. (Contributor), Laugesen, S. (Creator), Lyngholm, L. E. (Contributor), Verhoeff, M. (Contributor), So, R. K. L. (Contributor), Laugesen, L. E. (Creator), Lovell, B. (Contributor), McDonald, J. (Contributor), van den Berg, A. (Contributor), Hallas, P. (Contributor), Ludwig, M. (Contributor), Zainuddin, S. K. B. (Contributor) & Haak, H. R. (Creator), Figshare, 1 Jan 2021

    Dataset

  • Understanding what matters most to patients in acute care in seven countries, using the flash mob study design

    van den Ende, E. S. (Contributor), Schouten, B. (Creator), Kremers, M. N. T. (Creator), Cooksley, T. (Creator), Subbe, C. P. (Creator), Weichert, I. (Creator), van Galen, L. S. (Contributor), Haak, H. R. (Creator), Kellett, J. (Creator), Alsma, J. (Creator), Siegrist, V. (Creator), Holland, M. (Creator), Christensen, E. F. (Creator), Graham, C. A. (Creator), Yan, L. E. U. N. G. L. (Contributor), Laugesen, L. E. (Creator), Merten, H. (Creator), Mir, F. (Contributor), Kidney, R. M. (Creator), Brabrand, M. (Creator), Nanayakkara, P. W. B. (Creator) & Nickel, C. H. (Creator), Figshare, 2021

    Dataset

  • Understanding what matters most to patients in acute care in seven countries, using the flash mob study design

    van den Ende, E. S. (Contributor), Schouten, B. (Creator), Kremers, M. N. T. (Creator), Cooksley, T. (Creator), Subbe, C. P. (Creator), Weichert, I. (Creator), van Galen, L. S. (Contributor), Haak, H. R. (Creator), Kellett, J. (Creator), Alsma, J. (Creator), Siegrist, V. (Creator), Holland, M. (Creator), Christensen, E. F. (Creator), Graham, C. A. (Creator), Yan, L. E. U. N. G. L. (Contributor), Laugesen, L. E. (Creator), Merten, H. (Creator), Mir, F. (Contributor), Kidney, R. M. (Creator), Brabrand, M. (Creator), Nanayakkara, P. W. B. (Creator) & Nickel, C. H. (Creator), Figshare, 2021

    Dataset

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