Abstract
Guidelines for the establishment of an HNPCC register are presented. The aims of a register are discussed. Steps in identification of families and persons at risk are suggested, and possible sources of family and pedigree data are mentioned. The role of a register in surveillance, information of family members and medical colleagues, research and international collaboration are discussed.
Original language | English |
---|---|
Journal | Anticancer Research |
Volume | 14 |
Issue number | 4 B |
Pages (from-to) | 1647-1650 |
Number of pages | 4 |
ISSN | 0250-7005 |
Publication status | Published - 1994 |
Externally published | Yes |
Keywords
- Hereditary cancer
- Hereditary non-polyposis colorectal cancer
- HNPCC
- Lynch syndrome
- Register establisment
- Registration