Understanding what matters most to patients in acute care in seven countries, using the flash mob study design

Eva S. van den Ende; Bo Schouten; Marjolein N.T. Kremers; Tim Cooksley; Chris P. Subbe; Immo Weichert; Louise S. van Galen; Harm R. Haak; John Kellett; Jelmer Alsma; Victoria Siegrist; Mark Holland; Erika F. Christensen; Colin A. Graham; Ling Yan Leung; Line E. Laugesen; Hanneke Merten; Fraz Mir; Rachel M. Kidney; Mikkel Brabrand; Prabath W.B. Nanayakkara; Christian H. Nickel; Local collaborators; Vibe Maria Laden Nielsen; Marc Ludwig; Henriette Sloth Høg

doi:10.1186/s12913-021-06459-4

Understanding what matters most to patients in acute care in seven countries, using the flash mob study design

Eva S. van den Ende, Bo Schouten, Marjolein N.T. Kremers, Tim Cooksley, Chris P. Subbe, Immo Weichert, Louise S. van Galen, Harm R. Haak, John Kellett, Jelmer Alsma, Victoria Siegrist, Mark Holland, Erika F. Christensen, Colin A. Graham, Ling Yan Leung, Line E. Laugesen, Hanneke Merten, Fraz Mir, Rachel M. Kidney, Mikkel BrabrandPrabath W.B. Nanayakkara, Christian H. Nickel, Local collaborators, Vibe Maria Laden Nielsen (Medlem af forfattergruppering), Marc Ludwig (Medlem af forfattergruppering), Henriette Sloth Høg (Medlem af forfattergruppering)

Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › peer review

12 Citationer (Scopus)

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Abstract

BACKGROUND: Truly patient-centred care needs to be aligned with what patients consider important, and is highly desirable in the first 24 h of an acute admission, as many decisions are made during this period. However, there is limited knowledge on what matters most to patients in this phase of their hospital stay. The objective of this study was to identify what mattered most to patients in acute care and to assess the patient perspective as to whether their treating doctors were aware of this. METHODS: This was a large-scale, qualitative, flash mob study, conducted simultaneously in sixty-six hospitals in seven countries, starting November 14th 2018, ending 50 h later. One thousand eight hundred fifty adults in the first 24 h of an acute medical admission were interviewed on what mattered most to them, why this mattered and whether they felt the treating doctor was aware of this. RESULTS: The most reported answers to "what matters most (and why)?" were 'getting better or being in good health' (why: to be with family/friends or pick-up life again), 'getting home' (why: more comfortable at home or to take care of someone) and 'having a diagnosis' (why: to feel less anxious or insecure). Of all patients, 51.9% felt the treating doctor did not know what mattered most to them. CONCLUSIONS: The priorities for acutely admitted patients were ostensibly disease- and care-oriented and thus in line with the hospitals' own priorities. However, answers to why these were important were diverse, more personal, and often related to psychological well-being and relations. A large group of patients felt their treating doctor did not know what mattered most to them. Explicitly asking patients what is important and why, could help healthcare professionals to get to know the person behind the patient, which is essential in delivering patient-centred care. TRIAL REGISTRATION: NTR (Netherlands Trial Register) NTR7538 .

Originalsprog	Engelsk
Artikelnummer	474
Tidsskrift	BMC Health Services Research
Vol/bind	21
Udgave nummer	1
Antal sider	11
ISSN	1472-6963
DOI	https://doi.org/10.1186/s12913-021-06459-4
Status	Udgivet - 19 maj 2021

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van den Ende et al (2021) Understanding what matters most to patients in acute care in seven countries, using the flash mob study designForlagets udgivne version, 0,99 MBLicens: CC BY 4.0

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Additional file 1 of Understanding what matters most to patients in acute care in seven countries, using the flash mob study design
van Benthum, S. (Bidrager), Balakrishnan, T. (Bidrager), collaborators, O. B. O. A. L. (Ophavsperson), Dekkers, M. J. (Bidrager), Rowling, S. C. (Bidrager), Schouten, I. (Ophavsperson), Heitz, A. F. (Bidrager), Stassen, P. M. (Bidrager), Holleman, F. (Bidrager), Lindholm, S. F. (Bidrager), Lewis, A. (Bidrager), Christensen, E. F. (Ophavsperson), Mir, F. (Bidrager), Alsma, J. (Ophavsperson), Cozens, T. (Bidrager), Down, A. (Bidrager), Kabboue, H. (Bidrager), Dees, A. (Bidrager), van den Besselaar, J. (Bidrager), Green, A. M. (Bidrager), Christophersen, T. (Bidrager), Schouten, B. (Ophavsperson), Lavell, A. (Bidrager), Schultz, M. (Bidrager), Govers, A. (Bidrager), Van Den Beuken, S. J. L. W. (Bidrager), Tin, L. W. (Bidrager), Seccombe, A. (Bidrager), H?g, H. S. (Bidrager), van Galen, L. S. (Bidrager), Gamst-Jensen, H. (Bidrager), Zaalberg, T. (Bidrager), Siegert, C. E. H. (Bidrager), Jacobs, E. M. G. (Bidrager), Skj?t-Arkil, H. (Bidrager), Wors?e, M. (Bidrager), Karstensen, H. (Bidrager), Altemimi, H. (Bidrager), Kellett, J. (Ophavsperson), Weerasekera, C. (Bidrager), Thomsen, T. S. (Bidrager), Logtenberg, S. J. J. (Bidrager), Yan, L. E. U. N. G. L. (Bidrager), Nielsen, S. N. (Bidrager), Subbe, C. P. (Ophavsperson), Raz, Y. (Bidrager), Soe, T. (Bidrager), Lo, R. (Bidrager), Nickel, C. H. (Ophavsperson), Tygesen, G. B. (Bidrager), Deenen, S. (Bidrager), ter Maaten, J. C. (Bidrager), Bouchy Jacobsson, M. M. A. (Bidrager), Carels, G. (Bidrager), Leung, L. (Bidrager), Nielsen, C. D. (Bidrager), Jensen, K. M. (Bidrager), Timmers, G. (Bidrager), Boogers, W. (Bidrager), Snijer, B. (Bidrager), Weichert, I. (Ophavsperson), Nadarajah, C. V. (Bidrager), Cooksley, T. (Ophavsperson), Soong, J. (Bidrager), van Munster, B. V. (Bidrager), Bosch, F. H. (Bidrager), Nannan Panday, R. S. (Bidrager), Aabling, R. (Bidrager), Hansen, S. N. (Bidrager), Iversen, K. K. (Bidrager), Brabrand, M. (Ophavsperson), Schinkel, M. (Bidrager), Noordzij-Nooteboom, H. S. (Bidrager), Todorovac, N. (Bidrager), Andersen, K. V. (Bidrager), Keurlings, P. A. J. (Bidrager), Schattenkerk, D. E. (Bidrager), Romano, L. (Bidrager), Merten, H. (Ophavsperson), van Pelt-Sprangers, P. J. M. (Bidrager), Smedegaard, C. (Bidrager), Pedersen, L. (Bidrager), Ward, D. (Bidrager), Nielsen, V. M. L. (Bidrager), Anten, S. (Bidrager), Kidney, R. M. (Ophavsperson), de Kleijn, L. (Bidrager), Bri?t-Schipper, N. (Bidrager), Graham, C. (Ophavsperson), Nanayakkara, P. W. B. (Ophavsperson), El Morabit, F. (Bidrager), Kreiberg, M. P. B. (Bidrager), H?gsgaard, D. (Bidrager), Siegrist, V. (Ophavsperson), Bove, D. G. (Bidrager), Petersen, P. (Bidrager), Buunk, G. (Bidrager), Hoogerwerf, J. J. (Bidrager), Nygaard, H. (Bidrager), Barten, D. G. (Bidrager), Graham, C. A. (Ophavsperson), van den Corput, B. (Bidrager), Mikkelsen, V. K. S. (Bidrager), Holland, M. (Ophavsperson), Kristensen, T. M. (Bidrager), van den Ende, E. S. (Bidrager), Nashi, N. (Bidrager), Kremers, M. N. T. (Ophavsperson), Gans, E. (Bidrager), Laugesen, S. (Ophavsperson), Lyngholm, L. E. (Bidrager), Verhoeff, M. (Bidrager), So, R. K. L. (Bidrager), Laugesen, L. E. (Ophavsperson), Lovell, B. (Bidrager), McDonald, J. (Bidrager), van den Berg, A. (Bidrager), Hallas, P. (Bidrager), Ludwig, M. (Bidrager), Zainuddin, S. K. B. (Bidrager) & Haak, H. R. (Ophavsperson), Figshare, 1 jan. 2021
DOI: 10.6084/m9.figshare.14623457.v1, https://doi.org/10.6084%2Fm9.figshare.14623457.v1
Datasæt
Understanding what matters most to patients in acute care in seven countries, using the flash mob study design
van den Ende, E. S. (Bidrager), Schouten, B. (Ophavsperson), Kremers, M. N. T. (Ophavsperson), Cooksley, T. (Ophavsperson), Subbe, C. P. (Ophavsperson), Weichert, I. (Ophavsperson), van Galen, L. S. (Bidrager), Haak, H. R. (Ophavsperson), Kellett, J. (Ophavsperson), Alsma, J. (Ophavsperson), Siegrist, V. (Ophavsperson), Holland, M. (Ophavsperson), Christensen, E. F. (Ophavsperson), Graham, C. A. (Ophavsperson), Yan, L. E. U. N. G. L. (Bidrager), Laugesen, L. E. (Ophavsperson), Merten, H. (Ophavsperson), Mir, F. (Bidrager), Kidney, R. M. (Ophavsperson), Brabrand, M. (Ophavsperson), Nanayakkara, P. W. B. (Ophavsperson) & Nickel, C. H. (Ophavsperson), Figshare, 2021
DOI: 10.6084/m9.figshare.c.5430449, https://springernature.figshare.com/collections/Understanding_what_matters_most_to_patients_in_acute_care_in_seven_countries_using_the_flash_mob_study_design/5430449
Datasæt
Understanding what matters most to patients in acute care in seven countries, using the flash mob study design
van den Ende, E. S. (Bidrager), Schouten, B. (Ophavsperson), Kremers, M. N. T. (Ophavsperson), Cooksley, T. (Ophavsperson), Subbe, C. P. (Ophavsperson), Weichert, I. (Ophavsperson), van Galen, L. S. (Bidrager), Haak, H. R. (Ophavsperson), Kellett, J. (Ophavsperson), Alsma, J. (Ophavsperson), Siegrist, V. (Ophavsperson), Holland, M. (Ophavsperson), Christensen, E. F. (Ophavsperson), Graham, C. A. (Ophavsperson), Yan, L. E. U. N. G. L. (Bidrager), Laugesen, L. E. (Ophavsperson), Merten, H. (Ophavsperson), Mir, F. (Bidrager), Kidney, R. M. (Ophavsperson), Brabrand, M. (Ophavsperson), Nanayakkara, P. W. B. (Ophavsperson) & Nickel, C. H. (Ophavsperson), Figshare, 2021
DOI: 10.6084/m9.figshare.c.5430449.v1, https://springernature.figshare.com/collections/Understanding_what_matters_most_to_patients_in_acute_care_in_seven_countries_using_the_flash_mob_study_design/5430449/1
Datasæt

Citationsformater

van den Ende, E. S., Schouten, B., Kremers, M. N. T., Cooksley, T., Subbe, C. P., Weichert, I., van Galen, L. S., Haak, H. R., Kellett, J., Alsma, J., Siegrist, V., Holland, M., Christensen, E. F., Graham, C. A., Leung, L. Y., Laugesen, L. E., Merten, H., Mir, F., Kidney, R. M., ... Høg, H. S. (2021). Understanding what matters most to patients in acute care in seven countries, using the flash mob study design. BMC Health Services Research, 21(1), Artikel 474. https://doi.org/10.1186/s12913-021-06459-4

@article{627c1136df11494587fc62f2ee2f1730,

title = "Understanding what matters most to patients in acute care in seven countries, using the flash mob study design",

abstract = "BACKGROUND: Truly patient-centred care needs to be aligned with what patients consider important, and is highly desirable in the first 24 h of an acute admission, as many decisions are made during this period. However, there is limited knowledge on what matters most to patients in this phase of their hospital stay. The objective of this study was to identify what mattered most to patients in acute care and to assess the patient perspective as to whether their treating doctors were aware of this. METHODS: This was a large-scale, qualitative, flash mob study, conducted simultaneously in sixty-six hospitals in seven countries, starting November 14th 2018, ending 50 h later. One thousand eight hundred fifty adults in the first 24 h of an acute medical admission were interviewed on what mattered most to them, why this mattered and whether they felt the treating doctor was aware of this. RESULTS: The most reported answers to {"}what matters most (and why)?{"} were 'getting better or being in good health' (why: to be with family/friends or pick-up life again), 'getting home' (why: more comfortable at home or to take care of someone) and 'having a diagnosis' (why: to feel less anxious or insecure). Of all patients, 51.9% felt the treating doctor did not know what mattered most to them. CONCLUSIONS: The priorities for acutely admitted patients were ostensibly disease- and care-oriented and thus in line with the hospitals' own priorities. However, answers to why these were important were diverse, more personal, and often related to psychological well-being and relations. A large group of patients felt their treating doctor did not know what mattered most to them. Explicitly asking patients what is important and why, could help healthcare professionals to get to know the person behind the patient, which is essential in delivering patient-centred care. TRIAL REGISTRATION: NTR (Netherlands Trial Register) NTR7538 .",

keywords = "Acute care, Emergency medicine, Patient-centred care, Patient-physician communication, Quality of care, Research methods, What matters most",

author = "{van den Ende}, {Eva S.} and Bo Schouten and Kremers, {Marjolein N.T.} and Tim Cooksley and Subbe, {Chris P.} and Immo Weichert and {van Galen}, {Louise S.} and Haak, {Harm R.} and John Kellett and Jelmer Alsma and Victoria Siegrist and Mark Holland and Christensen, {Erika F.} and Graham, {Colin A.} and Leung, {Ling Yan} and Laugesen, {Line E.} and Hanneke Merten and Fraz Mir and Kidney, {Rachel M.} and Mikkel Brabrand and Nanayakkara, {Prabath W.B.} and Nickel, {Christian H.} and {all local collaborators} and Nielsen, {Vibe Maria Laden} and Marc Ludwig and H{\o}g, {Henriette Sloth}",

note = "Correction to article has been submitted: https://doi.org/10.1186/s12913-021-06580-4",

year = "2021",

month = may,

day = "19",

doi = "10.1186/s12913-021-06459-4",

language = "English",

volume = "21",

journal = "BMC Health Services Research",

issn = "1472-6963",

publisher = "BioMed Central",

number = "1",

}

van den Ende, ES, Schouten, B, Kremers, MNT, Cooksley, T, Subbe, CP, Weichert, I, van Galen, LS, Haak, HR, Kellett, J, Alsma, J, Siegrist, V, Holland, M, Christensen, EF, Graham, CA, Leung, LY, Laugesen, LE, Merten, H, Mir, F, Kidney, RM, Brabrand, M, Nanayakkara, PWB, Nickel, CH, Local collaborators, Nielsen, VML , Ludwig, M & Høg, HS 2021, 'Understanding what matters most to patients in acute care in seven countries, using the flash mob study design', BMC Health Services Research, bind 21, nr. 1, 474. https://doi.org/10.1186/s12913-021-06459-4

TY - JOUR

T1 - Understanding what matters most to patients in acute care in seven countries, using the flash mob study design

AU - van den Ende, Eva S.

AU - Schouten, Bo

AU - Kremers, Marjolein N.T.

AU - Cooksley, Tim

AU - Subbe, Chris P.

AU - Weichert, Immo

AU - van Galen, Louise S.

AU - Haak, Harm R.

AU - Kellett, John

AU - Alsma, Jelmer

AU - Siegrist, Victoria

AU - Holland, Mark

AU - Christensen, Erika F.

AU - Graham, Colin A.

AU - Leung, Ling Yan

AU - Laugesen, Line E.

AU - Merten, Hanneke

AU - Mir, Fraz

AU - Kidney, Rachel M.

AU - Brabrand, Mikkel

AU - Nanayakkara, Prabath W.B.

AU - Nickel, Christian H.

AU - all local collaborators

A2 - Nielsen, Vibe Maria Laden

A2 - Ludwig, Marc

A2 - Høg, Henriette Sloth

N1 - Correction to article has been submitted: https://doi.org/10.1186/s12913-021-06580-4

PY - 2021/5/19

Y1 - 2021/5/19

N2 - BACKGROUND: Truly patient-centred care needs to be aligned with what patients consider important, and is highly desirable in the first 24 h of an acute admission, as many decisions are made during this period. However, there is limited knowledge on what matters most to patients in this phase of their hospital stay. The objective of this study was to identify what mattered most to patients in acute care and to assess the patient perspective as to whether their treating doctors were aware of this. METHODS: This was a large-scale, qualitative, flash mob study, conducted simultaneously in sixty-six hospitals in seven countries, starting November 14th 2018, ending 50 h later. One thousand eight hundred fifty adults in the first 24 h of an acute medical admission were interviewed on what mattered most to them, why this mattered and whether they felt the treating doctor was aware of this. RESULTS: The most reported answers to "what matters most (and why)?" were 'getting better or being in good health' (why: to be with family/friends or pick-up life again), 'getting home' (why: more comfortable at home or to take care of someone) and 'having a diagnosis' (why: to feel less anxious or insecure). Of all patients, 51.9% felt the treating doctor did not know what mattered most to them. CONCLUSIONS: The priorities for acutely admitted patients were ostensibly disease- and care-oriented and thus in line with the hospitals' own priorities. However, answers to why these were important were diverse, more personal, and often related to psychological well-being and relations. A large group of patients felt their treating doctor did not know what mattered most to them. Explicitly asking patients what is important and why, could help healthcare professionals to get to know the person behind the patient, which is essential in delivering patient-centred care. TRIAL REGISTRATION: NTR (Netherlands Trial Register) NTR7538 .

AB - BACKGROUND: Truly patient-centred care needs to be aligned with what patients consider important, and is highly desirable in the first 24 h of an acute admission, as many decisions are made during this period. However, there is limited knowledge on what matters most to patients in this phase of their hospital stay. The objective of this study was to identify what mattered most to patients in acute care and to assess the patient perspective as to whether their treating doctors were aware of this. METHODS: This was a large-scale, qualitative, flash mob study, conducted simultaneously in sixty-six hospitals in seven countries, starting November 14th 2018, ending 50 h later. One thousand eight hundred fifty adults in the first 24 h of an acute medical admission were interviewed on what mattered most to them, why this mattered and whether they felt the treating doctor was aware of this. RESULTS: The most reported answers to "what matters most (and why)?" were 'getting better or being in good health' (why: to be with family/friends or pick-up life again), 'getting home' (why: more comfortable at home or to take care of someone) and 'having a diagnosis' (why: to feel less anxious or insecure). Of all patients, 51.9% felt the treating doctor did not know what mattered most to them. CONCLUSIONS: The priorities for acutely admitted patients were ostensibly disease- and care-oriented and thus in line with the hospitals' own priorities. However, answers to why these were important were diverse, more personal, and often related to psychological well-being and relations. A large group of patients felt their treating doctor did not know what mattered most to them. Explicitly asking patients what is important and why, could help healthcare professionals to get to know the person behind the patient, which is essential in delivering patient-centred care. TRIAL REGISTRATION: NTR (Netherlands Trial Register) NTR7538 .

KW - Acute care

KW - Emergency medicine

KW - Patient-centred care

KW - Patient-physician communication

KW - Quality of care

KW - Research methods

KW - What matters most

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U2 - 10.1186/s12913-021-06459-4

DO - 10.1186/s12913-021-06459-4

M3 - Journal article

C2 - 34011321

AN - SCOPUS:85106587448

SN - 1472-6963

VL - 21

JO - BMC Health Services Research

JF - BMC Health Services Research

IS - 1

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ER -

Understanding what matters most to patients in acute care in seven countries, using the flash mob study design

Abstract

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Additional file 1 of Understanding what matters most to patients in acute care in seven countries, using the flash mob study design